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Högström, E., Fjellfeldt, M. & Markström, U. (2026). Exploring socio-spatial encounters of people experiencing mental ill-health: a photovoice study. Wellbeing, Space and Society, 10, Article ID 100364.
Open this publication in new window or tab >>Exploring socio-spatial encounters of people experiencing mental ill-health: a photovoice study
2026 (English)In: Wellbeing, Space and Society, E-ISSN 2666-5581, Vol. 10, article id 100364Article in journal (Refereed) Published
Abstract [en]

With the deinstitutionalisation of mental health care, individuals experiencing mental ill-health are increasingly expected to live as integrated members of the community. Yet, little is known about how they experience their everyday living environments. Situated within the post-deinstitutional paradigm, this article explores how individuals with mental ill-health navigate and make sense of their socio-spatial contexts in relation to ‘doing’ wellbeing. A Photovoice study was conducted with 12 participants (aged 26–66), recruited from three member-based Fountain Houses in Sweden. The study draws on a relational space perspective on wellbeing. Findings reveal that experiences of space and place are deeply relational, embodied, and situated—shaped by events and social interactions. These experiences cut across four categories of place: (i) enabling, (ii) troublesome, (iii) ambiguous, and (iv) places entangled with memories. We discuss how varying degrees of agency influence the emergence of wellbeing, particularly in the face of structural constraints such as poverty and regulation. Participants’ accounts also suggest that their environments resemble an “inverted city” rather than the prevailing urban planning ideal of a dense, vibrant, and inclusive city life. We conclude by emphasising the need to recognise how people, places, and policies are entangled in the practice of ‘doing’ wellbeing. to equally acknowledge how individuals’ realisation of a ‘livable life’ is supported by these spatial, material, social, and affective relations. Finally, we urge professionals in social and spatial fields to apply spatio-temporal insights in the pursuit of social inclusion - or wellbeing as a commons - not only for the group discussed here but for society as a whole.

Place, publisher, year, edition, pages
Elsevier, 2026
Keywords
Mental health, Photovoice, Places, Post-deinstitutionalisation, Spatial experiences, Wellbeing
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-251150 (URN)10.1016/j.wss.2026.100364 (DOI)2-s2.0-105032233502 (Scopus ID)
Funder
Swedish Research Council Formas, 2018-00058Swedish Research Council Formas, 2018-00192Forte, Swedish Research Council for Health, Working Life and Welfare, 2018- 01325
Available from: 2026-03-18 Created: 2026-03-18 Last updated: 2026-03-18Bibliographically approved
Gustafsson, A., Näslund, H., Markström, U., Allaskog, C., Jenneteg, F. G., Argentzell, E., . . . Svedberg, P. (2026). Tensions as productive forces in coproduced mental health research: an explorative qualitative study. Research Involvement and Engagement, 12(1), Article ID 103.
Open this publication in new window or tab >>Tensions as productive forces in coproduced mental health research: an explorative qualitative study
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2026 (English)In: Research Involvement and Engagement, E-ISSN 2056-7529, Vol. 12, no 1, article id 103Article in journal (Refereed) Published
Abstract [en]

Background: In coproduced research, competing priorities among researchers and partners often surface as the work progresses, making such processes rarely tension-free. Although coproduction approaches are increasingly used in mental health research, there is limited understanding of how tensions are managed and how this influences collaboration. Hence, the aim of the study is to explore how tensions emerge within coproduced research by analysing the conditions, interactions, and processes influencing their emergence and management.

Methods: This study was conducted within UserInvolve, a six‑year Swedish research programme involving a national service user organisation as its principal partner. Using an exploratory qualitative design, the study examined coproduction in the programme. Data were collected in two stages: (1) preparatory exploration through six group interviews concerning coproduction processes with subproject group participants, including researchers, representatives from service user organisations, national agencies, service providers (2) in-depth exploration through four group interviews focusing explicitly on tensions with a purposeful sample of participants from stage one. An abductive analytical approach was used, combining inductive interpretations with a deductive framework of four tension types: organising, learning, performance, and belonging. The analysis proceeded through four phases: exploratory analysis, condensation, collective interpretation and final synthesis within the author group.

Results: All four tension types were identified, reflecting structural constraints, negotiations of knowledge, competing purposes and questions of legitimacy in collaboration. A finding was that dynamics of power — epistemic, organisational, and relational — cut across all tensions and shaped how participants interpreted situations, negotiated roles, and understood legitimate expertise. What appeared as practical challenges often reflected deeper shifts in authority, knowledge, and expectations. Tensions also acted as generative mechanisms that prompted participants to question assumptions and develop new ways of working. Strategies for managing tensions included adaptive reflexivity, shared learning, renegotiation of roles, and sustained relational investment.

Conclusions: Tensions are inherent to coproduced mental health research and can function as productive forces that support and strengthen collaboration, learning, and epistemic development. Findings indicate that tension‑based approaches require greater attention to power, which fundamentally shapes how tensions arise and are managed. Recognising tensions as potentially generative may strengthen the design and evaluation of coproduced research.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2026
Keywords
Collaborative research practices, Coproduction, Mental health research, Power dynamics, Service user involvement, Tension management strategies, Tensions
National Category
Other Social Sciences not elsewhere specified
Identifiers
urn:nbn:se:umu:diva-256637 (URN)10.1186/s40900-026-00934-0 (DOI)001806457600001 ()42374541 (PubMedID)2-s2.0-105043364611 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2021–01427
Available from: 2026-07-14 Created: 2026-07-14 Last updated: 2026-07-14Bibliographically approved
Gustafsson, A., Markström, U., Näslund, H. & Svedberg, P. (2025). Development and validation of the UserInvolve comprehensive toolkit for evaluating co-production in research: a guiding resource for researchers. Research Involvement and Engagement, 11(1), Article ID 93.
Open this publication in new window or tab >>Development and validation of the UserInvolve comprehensive toolkit for evaluating co-production in research: a guiding resource for researchers
2025 (English)In: Research Involvement and Engagement, E-ISSN 2056-7529, Vol. 11, no 1, article id 93Article in journal (Refereed) Published
Abstract [en]

Background: Despite the evident trend in health research to emphasise co-production approaches, there is a lack of established, comprehensive and concrete strategies and evaluation methods to effectively guide and assess them. This project aimed to develop, validate, and test a toolkit designed to enhance and evaluate co-productions in mental health research. The toolkit includes practical evaluation tools, such as a structured questionnaire and tailored interview guides, to support the initiation of research projects and assess the involvement, process and impact of co-production efforts.

Methods: This project used a co-production approach with formative research design to develop a comprehensive toolkit for evaluating the process and impact of co-production in mental health research. Conducted between 2022 and 2024, the project involved iterative engagement with diverse stakeholder groups, providing a dynamic testbed for developing, validating, and field-testing the instruments. The paper outlines the four-phase process: (1) toolkit generation, (2) validation, (3) field-testing, and (4) completion, detailing how the co-production approach shaped the toolkit’s design, relevance, usability, and rigor.

Results: The result of this project is a structured, practical, and comprehensive co-production evaluation toolkit designed specifically for mental health research, potentially involving a wide range of partnerships. The toolkit includes a project initiation guide, a process-oriented survey and interview-guide for mid- and post-project evaluations, and an impact-focused post-project group interview guide.

Conclusions: The findings address a critical gap in mental health research by developing a structured, practical, and comprehensive co-production evaluation toolkit. The toolkit offers comprehensive strategies for evaluating involvement and both the processes and impacts of co-production throughout a project's lifecycle.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2025
Keywords
Co-production, Evaluation toolkit, Instrument, Involvement, Mental health, Research, Service users
National Category
Epidemiology Public Health, Global Health and Social Medicine Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:umu:diva-243424 (URN)10.1186/s40900-025-00759-3 (DOI)40770385 (PubMedID)2-s2.0-105012739569 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2021–01427
Available from: 2025-08-21 Created: 2025-08-21 Last updated: 2025-08-21Bibliographically approved
Näslund, H., Grim, K. & Markström, U. (2025). Egen erfarenhet som en resurs för verksamhetsutveckling: en populärvetenskaplig rapport om brukarrevision som en strategi för stärkt kvalitetsarbete och brukarinflytande. Umeå: Umeå University
Open this publication in new window or tab >>Egen erfarenhet som en resurs för verksamhetsutveckling: en populärvetenskaplig rapport om brukarrevision som en strategi för stärkt kvalitetsarbete och brukarinflytande
2025 (Swedish)Report (Other (popular science, discussion, etc.))
Place, publisher, year, edition, pages
Umeå: Umeå University, 2025. p. 26
Series
Research reports in social work, ISSN 0282-1958 ; 59
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-241449 (URN)978-91-8070-738-1 (ISBN)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2025-06-25 Created: 2025-06-25 Last updated: 2025-06-25Bibliographically approved
Näslund, H., Grim, K. & Markström, U. (2025). Examining impact of service user involvement: a follow-up study of user-led mental health service evaluation. Frontiers in Psychiatry, 16, Article ID 1621918.
Open this publication in new window or tab >>Examining impact of service user involvement: a follow-up study of user-led mental health service evaluation
2025 (English)In: Frontiers in Psychiatry, E-ISSN 1664-0640, Vol. 16, article id 1621918Article in journal (Refereed) Published
Abstract [en]

User-focused monitoring (UFM) is a method for service evaluation led by service users, aimed at enhancing quality and service user involvement. Our study examines the experienced outcomes following the completion of five UFM projects within Swedish mental health service programs. Specifically, we focus on the barriers and facilitators to integrating user-led evaluations into service program development. Through interviews with user monitors, managers, staff, and service users involved in these evaluation projects, we conducted a directed content analysis focused on preconditions, processes, and outcomes. Our findings indicate that UFM projects contribute to specific development measures and improved relationships within service programs but also to broader cultural change. However, a lack of trust among service users in actual change poses a significant obstacle to their involvement. Additionally, the absence of feedback regarding the implementation of change measures by service programs to service user groups risks reinforcing this lack of trust. To enhance the integration of evaluation results into quality development, early engagement with staff groups and clear implementation plans are recommended.

Place, publisher, year, edition, pages
Frontiers Media S.A., 2025
Keywords
mental health, service user involvement, user-focused monitoring, service evaluation, impact
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-245805 (URN)10.3389/fpsyt.2025.1621918 (DOI)001600500700001 ()41158970 (PubMedID)2-s2.0-105019976183 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-01328
Available from: 2025-10-23 Created: 2025-10-23 Last updated: 2025-11-24Bibliographically approved
Bergmark, M., Markström, U., Richter Sundberg, L. & Rosenberg, D. (2025). Implementing evidence-based practices in rural areas: development and testing of a researcher practitioner collaboration in mental health. Journal of Evidence-Based Social Work, 22(1), 35-57
Open this publication in new window or tab >>Implementing evidence-based practices in rural areas: development and testing of a researcher practitioner collaboration in mental health
2025 (English)In: Journal of Evidence-Based Social Work, ISSN 2640-8066, E-ISSN 2640-8074, Vol. 22, no 1, p. 35-57Article in journal (Refereed) Published
Abstract [en]

Purpose: Rural communities face specific challenges when attempting to implement evidence-based interventions, due to their size, distance from knowledge centers, and broad responsibility for the local population. The aim of this study was to investigate the utilization of an RPC (Research Practice Collaboration) initiative as a strategy for translation and implementation of EBPs in rural municipalities seeking to develop their services for individuals with serious mental illness.

Materials and Methods: Following a broad invitation consisting of a presentation of the newly produced National Psychiatry Guidelines, to four northern regions in Sweden, four municipalities participated in an RPC process that focused on the implementation of specific EBPs.

Results: In addition to confirming many of the challenges in rural areas, the participants reported that the RPC process helped them to understand the relevance of these methods to their own conditions and ambitions. They were able to recognize and build on their already existing strengths and achieve incremental steps toward EBPs.

Discussion: The collaborative nature of the structure and knowledge dissemination, requiring extremely tailored implementation strategies while considering the essential components in relation to local conditions, led to increased readiness to implement these practices as locally relevant.

Conclusion: Research practice collaborations may contribute to the implementation of EBPs in rural areas by increasing the accessibility and relevance of these methods in these challenging conditions. Identifying structures for sustainably supporting these types of collaborations is a challenge for national actors.

Place, publisher, year, edition, pages
Routledge, 2025
Keywords
Rural implementation, evidence-based, mental health services, knowledge, co-production, research practice collaboration
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-231986 (URN)10.1080/26408066.2024.2430567 (DOI)001359350400001 ()39562849 (PubMedID)2-s2.0-85210015154 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2018-01344
Available from: 2024-11-20 Created: 2024-11-20 Last updated: 2025-01-10Bibliographically approved
Bergmark, M., Markström, U., Richter Sundberg, L. & Rosenberg, D. (2025). Implementing evidence-based psychiatric rehabilitation services in rural areas: development and testing of a research practice collaboration. In: : . Paper presented at WAPR2025, XV World Congress of World Association For Psychosocial Rehabilitation (WAPR) & the Canadian PSR Recovery Conference, Vancouver, Canada, September 27-30, 2025.
Open this publication in new window or tab >>Implementing evidence-based psychiatric rehabilitation services in rural areas: development and testing of a research practice collaboration
2025 (English)Conference paper, Oral presentation only (Refereed)
Abstract [en]

Background: Rural communities face specific challenges when implementing evidence-based practices (EBPs) due to their size, remoteness from knowledge centers, and broad responsibility for the local population. Studies indicate that these challenges can negatively impact the development of best practice for individuals with serious mental illnesses.

Purpose: The aim of this study was to investigate the utilization of an RPC (Research Practice Collaboration) initiative as a strategy for translation and implementation of psychiatric rehabilitation methods in rural municipalities.

Method:  With the starting point in form of a seminar where the updated National Psychiatry Guidelines were presented, four rural municipalities from the north of Sweden engaged in an RPC process, focusing on implementing specific recovery-oriented EBPs, including Individual Placement and Support and Shared Decision-Making.

Results: In addition to confirming challenges in rural areas, the RPC process helped the participants to understand the relevance of these practices to their own conditions and ambitions for individuals experiencing mental health problems. The municipalities were able to build on their already existing strengths and achieve incremental steps towards providing improved services.

Conclusions: The collaborative nature of the RPC structure, requiring locally relevant, tailored implementation strategies, while considering essential method components in relation to local conditions, led to increased readiness to implement these practices. Research practice collaborations may contribute to the implementation of methods based on best practice in rural areas by increasing their accessibility and relevance in these challenging conditions.

National Category
Social Sciences Social Work
Identifiers
urn:nbn:se:umu:diva-245653 (URN)
Conference
WAPR2025, XV World Congress of World Association For Psychosocial Rehabilitation (WAPR) & the Canadian PSR Recovery Conference, Vancouver, Canada, September 27-30, 2025
Available from: 2025-10-16 Created: 2025-10-16 Last updated: 2025-10-17Bibliographically approved
Näslund, H., Grim, K. & Markström, U. (2025). Implementing user-focused monitoring: a multi-case process study of user involvement in service development. Human service organizations, management, leadership & governance, 49(3), 313-327
Open this publication in new window or tab >>Implementing user-focused monitoring: a multi-case process study of user involvement in service development
2025 (English)In: Human service organizations, management, leadership & governance, ISSN 2330-3131, E-ISSN 2330-314X, Vol. 49, no 3, p. 313-327Article in journal (Refereed) Published
Abstract [en]

User-focused monitoring (UFM) is a method for fostering user involvement at organizational levels in the evaluation and quality development of mental health service and support programs. To enhance understanding of factors that promote or hinder the implementation of UFM, we have purposely sampled and followed five Swedish UFM projects through a case study approach, paying specific attention to key components for its sustainable implementation. We collected empirical data through interviews with involved actors during a start-up phase and shortly after the UFM projects ended, and examination of UFM reports. The acquired data were subjected to directed content analysis, guided by normalization process theory. The results highlight the importance of coherence in the goals and methodological procedures for promoting implementation of UFM projects, as well as activation of the engagement of both service users and staff in initial stages.

Place, publisher, year, edition, pages
Routledge, 2025
Keywords
Mental health, service evaluation, user involvement, user-focused monitoring
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-238529 (URN)10.1080/23303131.2025.2499462 (DOI)001480330200001 ()2-s2.0-105004315888 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-01328
Available from: 2025-05-07 Created: 2025-05-07 Last updated: 2025-07-11Bibliographically approved
Kjellgren, M., Lilliehorn, S. & Markström, U. (2025). School social work in sweden: Who are the children in counselling, and what support are they offered? a protocol study about individual counselling in elementary schools. Child and Adolescent Social Work Journal, 42, 109-121
Open this publication in new window or tab >>School social work in sweden: Who are the children in counselling, and what support are they offered? a protocol study about individual counselling in elementary schools
2025 (English)In: Child and Adolescent Social Work Journal, ISSN 0738-0151, E-ISSN 1573-2797, Vol. 42, p. 109-121Article in journal (Refereed) Published
Abstract [en]

The overall aim of the present study is to describe and explore the characteristics and content of school social worker’s (SSWs) individual counselling with children as these are imprinted in session protocols collected at Swedish elementary schools. Specific focus is placed on the character of the children’s concerns, the content of the SSW’s helping strategies, and challenges related to the alliance between the SSW and the children as experienced by the SSW. The study was based on data from a survey protocol of 20 SSW’s daily practice regarding their experiences in counselling children and adolescents. The data consisted of 193 protocols from the same number of unique individual sessions. Data were analysed through quantitative descriptive statistics. The data also contained a large proportion of open-ended textual answers, which were analysed through a qualitative summative content analysis. The counselling strategies were primarily divided into three parts, namely coaching, processing, and assessing. The most common practice elements used included elements of empowerment, alliance and relationship, and hope and trust. In counselling children, SSWs identified a broad range of problems in children’s overall lives. Many children suffered from their home situations, which also impinged upon the SSWs, who were affected by the children’s life narrative. Our results can help inform SSW policy and practices as SSWs assist vulnerable children through individual counselling that corresponds to their help-seeking behaviour and by offering a space for alliances and relationships.

Place, publisher, year, edition, pages
Springer Publishing Company, 2025
Keywords
Children’s concerns, Counselling strategies, School social work
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-214584 (URN)10.1007/s10560-023-00943-y (DOI)001066041500001 ()2-s2.0-85170847183 (Scopus ID)
Funder
Umeå University
Available from: 2023-09-28 Created: 2023-09-28 Last updated: 2025-05-28Bibliographically approved
Engdahl, P., Bejerholm, U., Markström, U., Gustafsson, A., Rosenberg, D. & Argentzell, E. (2025). Stakeholders' perspectives on the landscape of peer support in Swedish mental health services: a qualitative study. Journal of Psychosocial Rehabilitation and Mental Health, Article ID e058724.
Open this publication in new window or tab >>Stakeholders' perspectives on the landscape of peer support in Swedish mental health services: a qualitative study
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2025 (English)In: Journal of Psychosocial Rehabilitation and Mental Health, ISSN 2198-9834, E-ISSN 2198-963X, article id e058724Article in journal (Refereed) Epub ahead of print
Abstract [en]

The integration of peer support workers (PSW) into the mental health services workforce has offered additional avenues to strengthen service provision. In Sweden, the availability of peer support workers has grown significantly over the past decade, yet there has been insufficient investigation into their organization and implementation. Consequently, there is a growing need for further research into the current state of peer support within the Swedish context. To examine stakeholders’ perspectives on the current state of peer support within the context of Swedish mental health services. In this qualitative study, a purposeful sampling method was employed in order to recruit 30 stakeholders, including peer support workers (n = 17) within mental health services, county council and municipal officials (n = 8), and representatives from user organizations (n = 5). The informants took part in focus groups or semi-structured individual interviews. The results highlight key factors from stakeholders for advancing peer support, providing PSWs with career paths and skill development, and advocating to top-level authorities. Organizational structures need to support sustainability, with Sweden's user organizations playing a crucial role to mitigate peer drifting. Long-term success relies on secure employment and a clear implementation strategy. The physical work environment shapes peer support implementation and requires clearly defined work roles. Navigating mental health services was viewed as challenging. According to the results, it requires stakeholders to balance perspectives and address feelings of inadequacy among PSWs, underscoring the need to legitimize the PSW profession in mental health care. To ensure genuine progress in the current organization of peer support, this work role must become a foundational aspect of service delivery, rather than merely an add-on, to foster the development of a more recovery-oriented mental health service in Sweden.

Place, publisher, year, edition, pages
Springer Nature, 2025
Keywords
Peer support, Recovery, Mental health, Stakeholders’ perspectives
National Category
Social Work
Identifiers
urn:nbn:se:umu:diva-236091 (URN)10.1007/s40737-025-00452-4 (DOI)2-s2.0-85218706729 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2021–01427Lund University
Available from: 2025-03-04 Created: 2025-03-04 Last updated: 2025-10-28
Projects
Mental health service user movements post de-institutionalization ? forms of organization and attitudes to services [2015-00414_Forte]; Umeå UniversityHousing and living environments for people with psychiatric disabilities. Aligning social services and housing planning through experimental collaborative practices. [2018-01325_Forte]; Umeå University; Publications
Lilliehorn, S., Fjellfeldt, M., Högström, E. & Markström, U. (2023). Contemporary accommodation services for people with psychiatric disabilities: the simple taxonomy for supported accommodation (STAX-SA) applied and discussed in a Swedish context. Scandinavian Journal of Disability Research, 25(1), 92-105Markström, U., Högström, E. & Fjellfeldt, M. (2023). Mental health supported accommodation services in a post-deinstitutionalised era: Experiences from Swedish service providers. Alter;European Journal of Disability Research ;Journal Europeen de Recherche Sur le Handicap, 17(3), 39-56Högström, E., Markström, U., Berglund Snodgrass, L., Fjellfeldt, M., Andersén, J. & Lilliehorn, S. (2021). Boende och livsmiljö för personer med psykisk ohälsa: en forskningsrapport om stödinsatser, samarbete över förvaltningsgränser och bostadsförsörjning. Karlskrona: Blekinge Tekniska Högskola
Research communication aimed at nursing and caring staff in the field of elderly and disability care and their managers [KOM18-1359:1_RJ]; Umeå University
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-6330-5640

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