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Holmlund, L., Hörnsten, C., Valham, F., Olsson, K., Hörnsten, Å. & Hellström Ängerud, K. (2024). Illness perceptions and health-related quality of life in women and men with atrial fibrillation. Journal of Cardiovascular Nursing, 39(1), 49-57
Open this publication in new window or tab >>Illness perceptions and health-related quality of life in women and men with atrial fibrillation
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2024 (English)In: Journal of Cardiovascular Nursing, ISSN 0889-4655, E-ISSN 1550-5049, Vol. 39, no 1, p. 49-57Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Health-related quality of life (HRQoL) is worse in patients with atrial fibrillation (AF) compared with other populations. Factors affecting HRQoL in patients with AF are not fully clarified. Illness perceptions are important determinants of disease management and may affect HRQoL.

OBJECTIVE: The aims of this study were to describe illness perceptions and HRQoL in women and men with AF and to explore the relationship between illness perceptions and HRQoL in patients with AF.

METHODS: This cross-sectional study included 167 patients with AF. Patients completed the Revised Illness Perception Questionnaire and HRQoL questionnaires: Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmias, the three-level version of the EuroQol 5-dimensional questionnaire, and EuroQol visual analog scale. Subscales of the Revised Illness Perception Questionnaire significant in correlation analysis with the Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmias HRQoL total scale were included in a multiple linear regression model.

RESULTS: Mean age was 68.7 ± 10.4 years, and 31.1% were women. Women reported lower personal control (P = .039) and worse HRQoL measured with the Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmias physical subscale (P = .047) and the EuroQol visual analog scale (P = .044) compared with men. Illness identity (P < .001), consequences (P = .031), emotional representation (P = .014), and timeline cyclical (P = .022) were related to and adversely affected HRQoL.

CONCLUSIONS: This study found a relationship between illness perceptions and HRQoL. Some subscales of illness perceptions negatively affected HRQoL in patients with AF, which indicates that efforts to change illness perceptions may be helpful in improving HRQoL. Patients should be given the opportunity to talk about the disease, their symptoms, their emotions, and the consequences of the disease to enable increased HRQoL. A challenge for healthcare will be to design support for each patient based on his/her illness perceptions.

Place, publisher, year, edition, pages
Wolters Kluwer, 2024
Keywords
atrial fibrillation, health-related quality of life, illness perceptions
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-206996 (URN)10.1097/JCN.0000000000000995 (DOI)37074949 (PubMedID)2-s2.0-85178651164 (Scopus ID)
Available from: 2023-04-25 Created: 2023-04-25 Last updated: 2023-12-22Bibliographically approved
Holmlund, L., Hörnsten, C., Hörnsten, Å., Olsson, K., Valham, F. & Hellström Ängerud, K. (2024). More positive patient-reported outcomes in patients newly diagnosed with atrial fibrillation: a comparative longitudinal study. European Journal of Cardiovascular Nursing
Open this publication in new window or tab >>More positive patient-reported outcomes in patients newly diagnosed with atrial fibrillation: a comparative longitudinal study
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2024 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953Article in journal (Refereed) Epub ahead of print
Abstract [en]

Aims: To compare patient-reported outcomes (PROs) in patients newly (<6 months) diagnosed with atrial fibrillation (AF) with those who have had a longer diagnosis (≥6 months) and to investigate whether or not these outcomes change over a 6-month period.

Methods and results: In this longitudinal survey study, 129 patients with AF completed the Revised Illness Perception Questionnaire, the Arrhythmia-Specific questionnaire in Tachycardia and Arrhythmia, and the Hospital Anxiety and Depression Scale at baseline and after 6 months. At baseline, patients newly diagnosed with AF (n = 53), compared with patients with a previous diagnosis (n = 76), reported AF as more temporary (P = 0.003) and had a higher belief in personal and treatment control (P = 0.004 and P = 0.041, respectively). At a 6-month follow-up, patients newly diagnosed reported a lower symptom burden (P = 0.004), better health-related quality of life (HRQoL); (P = 0.015), and a higher personal control (P < 0.001) than patients previously diagnosed. Over time, in patients newly diagnosed, symptom burden and the anxiety symptom score decreased (P = 0.001 and P = 0.014, respectively) and HRQoL improved (P = 0.002).

Conclusion: Patients newly diagnosed with AF reported more positive PROs both at baseline and at a 6-month follow-up than patients with a previous diagnosis of AF. Therefore, it is important to quickly capture patients newly diagnosed to support their belief in their own abilities. Such support may, alongside medical treatments, help patients manage the disease, which may lead to reduced symptom burden and better HRQoL over time.

Place, publisher, year, edition, pages
Oxford University Press, 2024
Keywords
Anxiety, Atrial fibrillation, Depression, Health-related quality of life, Newly diagnosed, Patient-reported outcomes, Symptom burden
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-222452 (URN)10.1093/eurjcn/zvad139 (DOI)
Funder
Umeå UniversitySwedish Heart Lung Foundation
Available from: 2024-03-18 Created: 2024-03-18 Last updated: 2024-03-18
Rapo, E., Johansson, E., Jonsson, F., Hörnsten, Å., Lundgren, A. S. & Nilsson, I. (2023). Critical components of social prescribing programmes with a focus on older adults - a systematic review. Scandinavian Journal of Primary Health Care, 41(3), 326-342
Open this publication in new window or tab >>Critical components of social prescribing programmes with a focus on older adults - a systematic review
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2023 (English)In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 41, no 3, p. 326-342Article, review/survey (Refereed) Published
Abstract [en]

Aims: The aim of this study was to identify and evaluate critical components within social prescribing programmes that can impact loneliness, health, or well-being among older adults.

Methods: A systematic review with a narrative synthesis was conducted by systematically searching five databases. A total of 1193 hits were identified, screened, and assessed. Twelve studies were included, with data being extracted and deductively analysed in an iterative manner and then tabulated together with outcomes in order to find common narratives.

Results: Three critical components were identified: Assessment before prescription, matching participants with relevant activities, and individualised support from link worker. These critical components seemed important for the success of social prescribing programmes since they had an impact on loneliness, health, and well-being. All together, these results highlight the importance of person-centeredness in the prescribing process.

Conclusions: The three critical components identified may prove useful in further research, evaluation, or implementation of social prescribing programmes. Important aspects for further evaluation are discussed.

Place, publisher, year, edition, pages
Taylor & Francis, 2023
Keywords
loneliness, older adults, person-centred care, primary healthcare, Social prescribing
National Category
Public Health, Global Health, Social Medicine and Epidemiology Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
urn:nbn:se:umu:diva-212498 (URN)10.1080/02813432.2023.2237078 (DOI)001032194000001 ()37485982 (PubMedID)2-s2.0-85165571862 (Scopus ID)
Available from: 2023-08-01 Created: 2023-08-01 Last updated: 2023-09-29Bibliographically approved
Löyttynen, J., Hällgren Graneheim, U. & Hörnsten, Å. (2023). District nurses’ experiences of practice in caring for people with mental ill-health in Swedish primary care. Issues in Mental Health Nursing, 44(5), 396-405
Open this publication in new window or tab >>District nurses’ experiences of practice in caring for people with mental ill-health in Swedish primary care
2023 (English)In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 44, no 5, p. 396-405Article in journal (Refereed) Published
Abstract [en]

Mental ill-health is one of the greatest public health challenges in Sweden, and it is estimated that every third person seeking primary care in the country suffers from mental ill-health. Without proper treatment at an early stage, mental ill-health may lead to long-term illness and have a significant impact on functional ability. As district nurses are specialists in public health nursing, they have been pointed out as having a key role in the prevention and management of mental ill-health. The aim was to explore district nurses’ practice in caring for people with mental ill-health within primary health care. Individual semi-structured interviews were conducted with district nurses (n = 18) and the transcribed text was subjected to qualitative content analysis. The result was formulated as several subthemes, eventually developed into three themes: Practicing within an organisation where traditional attitudes are impediments, Perceiving mental healthcare as not being an obvious part of district nursing, Working as fellow human beings rather than “professionals”. The findings indicate that district nurses feel uncertainty in their practice in this area. Working independently with mental ill-health was not always considered socially acceptable among district nurses. Despite these challenges they tried to remain involved without becoming emotionally overwhelmed. They also strived to meet the needs of these patients with ‘small things’, that could be effective and a part of recovery-oriented practice, even if they might be defined as unprofessional, and their efficacy negated.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2023
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-207693 (URN)10.1080/01612840.2023.2193639 (DOI)000972232100001 ()37053044 (PubMedID)2-s2.0-85152958560 (Scopus ID)
Available from: 2023-04-28 Created: 2023-04-28 Last updated: 2023-07-12Bibliographically approved
Holmlund, L., Hellström Ängerud, K., Hörnsten, Å., Valham, F. & Olsson, K. (2023). Experiences of living with symptomatic atrial fibrillation. Nursing Open, 10(3), 1821-1829
Open this publication in new window or tab >>Experiences of living with symptomatic atrial fibrillation
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2023 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 10, no 3, p. 1821-1829Article in journal (Refereed) Published
Abstract [en]

AIM: To explore the experiences of living with symptomatic atrial fibrillation.

DESIGN: This study, with a descriptive qualitative adesign, was performed using semi-structured individual interviews.

METHOD: Six women and nine men with symptomatic atrial fibrillation were included. The transcribed interviews were analysed using qualitative content analysis. The COREQ checklist was followed.

RESULTS: The analysis resulted in a main theme, namely balancing life and included the themes striving for illness control, becoming a receiver or an active partner in care and dealing with changed self-image. The participants strived to understand their illness, prevent attacks and manage anxiety. Some of the participants were not involved in decision-making, were uninformed about self-care measures, reported a lack of continuity in care and felt that the doctors focused on information about the medical part of care.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
atrial fibrillation, experiences, interviews, qualitative research
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-200942 (URN)10.1002/nop2.1442 (DOI)000875848500001 ()36309946 (PubMedID)2-s2.0-85141152075 (Scopus ID)
Available from: 2022-11-10 Created: 2022-11-10 Last updated: 2023-07-13Bibliographically approved
Olsson, S., Otten, J., Blusi, M., Lundberg, E. & Hörnsten, Å. (2023). Experiences of transition to adulthood and transfer to adult care in young adults with type 1 diabetes: a qualitative study. Journal of Advanced Nursing, 79(12), 4621-4634
Open this publication in new window or tab >>Experiences of transition to adulthood and transfer to adult care in young adults with type 1 diabetes: a qualitative study
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2023 (English)In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 79, no 12, p. 4621-4634Article in journal (Refereed) Published
Abstract [en]

Aim: To explore young adults' experiences of living with type 1 diabetes in the transition to adulthood, including experiences of the transfer from paediatric to adult care.

Design: A qualitative approach was used.

Method: Ten young adults, six women and four men, aged 19–29 years, participated. Participants were recruited at their regular diabetes clinic from spring 2021 to spring 2022. Semi-structured interviews were transcribed and analysed using qualitative content analysis.

Findings: Dreaming of being nurtured towards self-reliance was the overarching theme. Personal experiences of the transition to adulthood, including the transfer from paediatric to adult care, were described in terms of struggling to find balance in daily life, dealing with feelings of being different, being gradually supported to achieve independence, and wishing to be approached as a unique person in healthcare.

Conclusion: In healthcare, it is important to emphasize not only diabetes-related factors but also emotional and psychosocial aspects of life connected to the transition to adulthood, including the transfer to adult care. The young adults wished to be seen as unique persons in healthcare during their emerging adulthood and should therefore be supported to achieve self-reliance through personal preparations for new challenges and for the consequences of transitioning to adulthood. Specialist nurses can provide appropriate knowledge and leadership.

Implications for the Profession: These findings can guide nurse specialists in support for emerging adults to achieve self-reliance and indicate the importance of person-centred care when experiencing transition and transfer.

Reporting Method: The study adhered to EQUATOR guidelines, and the COREQ checklist for qualitative studies was used as the reporting method.

Keywords
adolescence, adult care, emerging adulthood, emotional aspects, experiences, nursing, psychosocial aspects, qualitative, transfer, transition, type 1 diabetes, young adults
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-211810 (URN)10.1111/jan.15740 (DOI)001019706600001 ()37357405 (PubMedID)2-s2.0-85162989601 (Scopus ID)
Funder
Diabetesfonden
Available from: 2023-07-11 Created: 2023-07-11 Last updated: 2023-12-21Bibliographically approved
Valan, L., Isaksson, U. & Hörnsten, Å. (2023). Needs and expectations of nurse-led digital support among parents of children in child health care. Child Care Health and Development
Open this publication in new window or tab >>Needs and expectations of nurse-led digital support among parents of children in child health care
2023 (English)In: Child Care Health and Development, ISSN 0305-1862, E-ISSN 1365-2214Article in journal (Refereed) Submitted
Place, publisher, year, edition, pages
John Wiley & Sons, 2023
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-215112 (URN)
Available from: 2023-10-09 Created: 2023-10-09 Last updated: 2024-03-22
Susanne, J. & Hörnsten, Å. (2023). Preventing well leg compartment syndrome among patients in the lithotomy position - operating room nurses' perspectives: a qualitative study. Nursing Open, 10(10), 7092-7101
Open this publication in new window or tab >>Preventing well leg compartment syndrome among patients in the lithotomy position - operating room nurses' perspectives: a qualitative study
2023 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 10, no 10, p. 7092-7101Article in journal (Refereed) Published
Abstract [en]

Aim: To describe operating room nurses' experiences of well leg compartment syndrome and how they work perioperative to prevent it during the lithotomy position.

Design: The study had a qualitative design.

Methods: Focus group interviews were performed with 10 operating room (OR) nurses. The interviews were semi-structured and analysed by qualitative content analysis. The study complied with the Consolidated Criteria for Reporting Qualitative Research (COREQ).

Results: The main theme showed that the OR nurses shoulder duty and responsibility, independently and in the team, but they need more structural support and knowledge. The themes showed that they follow routines whenever possible and take responsibility for positioning; however, they have to balance between flexibility and strict routines. Although they also develop and participate in teamwork, they still need further knowledge.

Conclusion: The severe complication of well leg compartment syndrome (WLCS) can occur when the patient is in the lithotomy position. Maintaining the same routines and paying attention to the WHO's surgical safety checklist were described as actions that could prevent well leg compartment syndrome.

Patient or Public Contribution: No patient or public contribution. We have interviewed nurses but without financial support since the study was performed and supervised within a master programme.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
lithotomy position, OR nurses, prevention, qualitative method, surgery, well leg compartment syndrome
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-213065 (URN)10.1002/nop2.1971 (DOI)37571958 (PubMedID)2-s2.0-85167675664 (Scopus ID)
Available from: 2023-08-24 Created: 2023-08-24 Last updated: 2024-01-03Bibliographically approved
Sjöström, A. E., Hajdarevic, S., Hörnsten, Å., Kristjánsdóttir, Ó., Castor, C. & Isaksson, U. (2023). The Swedish version of the eHealth literacy questionnaire: Translation, cultural adaptation, and validation study. Journal of Medical Internet Research, 25, Article ID e43267.
Open this publication in new window or tab >>The Swedish version of the eHealth literacy questionnaire: Translation, cultural adaptation, and validation study
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2023 (English)In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 25, article id e43267Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: With the increasing digitalization in health care, an effective instrument is necessary to assess health care consumers' digital competencies-their "eHealth literacy." The 7-scale eHealth Literacy Questionnaire (eHLQ), based on the theoretically robust eHealth Literacy Framework, has shown strong psychometric properties in Denmark and Australia.

OBJECTIVE: The aim of this study was to translate, culturally adapt, and evaluate the psychometric properties of the Swedish version of the eHLQ.

METHODS: We followed the Translation Integrity Procedure guidelines to translate and culturally adapt the questionnaire to Swedish using forward and backward translations, review by an expert panel, and cognitive interviewing. The psychometric properties of the Swedish eHLQ were investigated by evaluating its internal consistency (Cronbach α) and a priori-defined factor structure (confirmatory factor analysis).

RESULTS: A total of 236 primary health care patients and parents of hospitalized children were included in the validation analysis. The mean age was 48.5 years, and 129 (55%) were women. All 7 eHLQ scales showed good internal consistency, with the Cronbach α ranging from .82 to .92. Single-factor and 7-factor confirmatory factor analysis showed satisfactory model-fit values. With one exception, all items demonstrated satisfactory loadings on their respective factors.

CONCLUSIONS: The Swedish eHLQ demonstrated strong psychometric properties. It has the potential as a useful tool for a variety of purposes, including population surveys, intervention evaluations, and eHealth service implementations.

Place, publisher, year, edition, pages
JMIR publications, 2023
Keywords
cultural adaptation, digital health, eHLQ, eHealth, eHealth literacy, health literacy, validation
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-206994 (URN)10.2196/43267 (DOI)37043268 (PubMedID)2-s2.0-85152474327 (Scopus ID)
Funder
Swedish Diabetes AssociationForte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2023-04-24 Created: 2023-04-24 Last updated: 2024-01-17Bibliographically approved
Backman Lönn, B., Hajdarevic, S., Olofsson, N., Hörnsten, Å. & Styrke, J. (2022). Clarifying the role of clinical research nurses working in Sweden, using the clinical trial nursing questionnaire: swedish version. Nursing Open, 9(5), 2434-2443
Open this publication in new window or tab >>Clarifying the role of clinical research nurses working in Sweden, using the clinical trial nursing questionnaire: swedish version
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2022 (English)In: Nursing Open, E-ISSN 2054-1058, Vol. 9, no 5, p. 2434-2443Article in journal (Refereed) Published
Abstract [en]

Aim:  To explore the role of CRNs in Sweden and differences in competences and tasks, using the Clinical Trial Nursing Questionnaire - Swedish version (CTNQ-SWE).

Design:  A cross-sectional survey.

Methods:  Participants were identified through strategic sampling. Data were analysed by descriptive and comparative statistics.

Results:  The respondents were experienced nurses who felt proficient in their role, they felt more acceptance by the principal investigators than by nursing colleagues. A majority of CRNs are involved in all procedures specified in the CTNQ-SWE. The most often performed tasks, also rated as the most important by the CRNs, concerned informed consent and management of investigational products. The education was often informal: with a lack of job descriptions and professional development plans. Need of formal specialist education was expressed.

Conclusions:  Knowledge about the role description can be used by clinical research enterprise internationally and healthcare organizations aiming to support CRNs in their role.

Place, publisher, year, edition, pages
John Wiley & Sons, 2022
Keywords
clinical research nurse, clinical study coordinator, clinical trial nurse, clinical trial nursing questionnaire, competence, nurse, professional development, registered nurse, role, swedish, tasks
National Category
Nursing
Identifiers
urn:nbn:se:umu:diva-197305 (URN)10.1002/nop2.1260 (DOI)000804728800001 ()35652538 (PubMedID)2-s2.0-85131172217 (Scopus ID)
Available from: 2022-06-27 Created: 2022-06-27 Last updated: 2023-04-27Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-1543-6512

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