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Spetz, Agneta
Publications (2 of 2) Show all publications
Spetz, A., Henriksson, R. & Salander, P. (2008). A specialist nurse as a resource for family members to patients with brain tumors: an action research study. Cancer Nursing, 31(4), E18-26
Open this publication in new window or tab >>A specialist nurse as a resource for family members to patients with brain tumors: an action research study
2008 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 31, no 4, p. E18-26Article in journal (Refereed) Published
Abstract [en]

There are few scientific publications available with a focus on the value of supportive care services for patients with brain tumors and their families. The present study is part of a project where a specialist nurse (SN) function was implemented for patients with malignant glioma and their next-of-kin. The purpose of the present study was to identify how next-of-kin made use of the SN function. To identify what they asked for when they contacted the nurse is a way of understanding the vulnerability of family members and thus to learn how to provide better support to the benefit of the family. In accordance to a design inspired by action research, the SN approached patients and next-of-kin during diagnosis at the Departments of Oncology/Neurosurgery and informed them that they could use her as a resource when they wanted. The SN documented all contacts with the next-of-kin of 16 consecutive patients in field notes during the course of the disease: telephone calls and personal meetings-who contacted whom, about what, and with what outcome. In addition, summarizing interviews were conducted. The study is based on the field notes and complemented with the interview data. Different needs were expressed throughout the relationship between the next-of-kin and the SN: initially, conversation about the sick family member was paramount, but as time passed, talk about oneself came to the forefront, and thereafter, they also commented on the relationship to the SN in a more personal tone. The relationship to the SN per se is important-the SN function can be far more than a provider of information. Altogether, the platform provided by the SN easily lends itself to the conceptualization of "a secure base" in attachment theory.

Keywords
Action research, Brain tumor, Specialist nurse, Spouse, Support
Identifiers
urn:nbn:se:umu:diva-10312 (URN)10.1097/01.NCC.0000305741.18711.8f (DOI)18600107 (PubMedID)2-s2.0-56049094359 (Scopus ID)
Available from: 2008-08-11 Created: 2008-08-11 Last updated: 2023-03-24Bibliographically approved
Spetz, A., Henriksson, R., Bergenheim, A. T. & Salander, P. (2005). A specialist nurse-function in neurooncology: a qualitative study of possibilities, limitations, and pitfalls. Palliative & Supportive Care, 3(2), 121-130
Open this publication in new window or tab >>A specialist nurse-function in neurooncology: a qualitative study of possibilities, limitations, and pitfalls
2005 (English)In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 3, no 2, p. 121-130Article in journal (Refereed) Published
Keywords
Brain tumor, relationship, specialist nurse, spouse
Identifiers
urn:nbn:se:umu:diva-14643 (URN)10.1017/S1478951505050200 (DOI)16594437 (PubMedID)2-s2.0-33645969591 (Scopus ID)
Available from: 2007-12-06 Created: 2007-12-06 Last updated: 2023-03-24Bibliographically approved
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