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Title [sv]
Digitala vårdlandskap: Digitaliseringen av svensk sjukvård och dess betydelse för äldre patienter på landsbygden
Title [en]
Digital landscapes of care: The digitalisation of Swedish health care and its significance for older patients in rural areas
Abstract [sv]
Implementeringen av digital teknik i vården har ökat dramatiskt de senaste tio åren och regeringens mål är att vara ?bäst i världen? på e-hälsa år 2025. Ändå saknas kunskap om hur digital vårdteknik påverkar praktisk vård och upplevelser av vård. Detta gäller särskilt äldre, trots att just äldre, särskilt de som bor på landsbygden, återkommande utmålas som specifik målgrupp för implementeringen av e-hälsa.Vi menar att det finns ett behov av att förstå e-hälsovårdens kulturella organisering samt de konkreta och varaktiga effekter den nya tekniken har för vårdtagares upplevelser och vårdbeteenden. I studien anläggs därför ett kvalitativt perspektiv på e-hälsa. Det övergripande syftet är att undersöka det digitala vårdlandskap som växer fram och vad detta betyder för vårdtagande.Genom tre empiriska delstudier ? av vårdens vardag, av vårdpolicy och av digitala verktyg (medicinska appar) ? undersöks betydelser av ny digital vårdteknik. Vi gör detta med särskilt fokus på vården av äldre i landsbygd. Projektets kulturella utgångspunkter samt etnografiska och medievetenskapliga metoder ger perspektiv på digitaliseringen av vården som skiljer sig från det fokus på teknik och utvärdering som annars dominerar forskningsfältet.I projektet använder vi begreppet ?vårdlandskap?. Begreppet synliggör den digitaliserade vårdens kulturella topografi; hur konstruktioner av e-hälsa påverkar hur vårdtagare kan navigera i vården ? fysiskt, socialt och virtuellt. Det omfattar möjligheter till delaktighet och självbestämmande, men också känslor av oro och beroende. Vi menar att sådana vårdlandskap bör studeras intersektionellt, dvs med en känslighet för hur olika maktaxlar samverkar. Vi undersöker särskilt hur digitaliserad vård samspelar med föreställningar om plats, ålder och genus, liksom hur e-hälsa därigenom har konsekvenser för vårdtagande och patientskap.
Abstract [en]
The implementation of digital technology in health care has increased dramatically over the past ten years and the government?s goal is to become ?the world?s best? e-health provider by 2025. Yet, there is little knowledge on how digital technologies affect health care practices and experiences of care. This is especially true for older people in rural areas, although they are commonly portrayed as a target group for the implementation of e-health.We believe that there is a need to understand the cultural organisation of e-health as well as the tangible and lasting impact it has on care receivers? experiences and health behaviours. Hence, the study employs a qualitative perspective on e-health. The aim is to explore the digital landscape of care constituted by e-health and its significance for the reception of care.We investigate the meanings of new digital healthcare technology through three empirical studies ? of everyday healthcare, health care policy and digital tools (medical apps). This is done with a special focus on the care of older people in rural areas. Our cultural approach as well as our ethnographic and digital methods provide perspectives on the digitalisation of health care that differ from the focus on technology and evaluation which dominates this research field.The term ?landscape of care? is central to the project. This concept makes visible the cultural topography of digitalised healthcare; how the construction of e-health affects the way patients navigate the fields of healthcare ? physically, socially and virtually. It includes opportunities for participation and autonomy, but also feelings of anxiety and dependency. We believe that such landscapes of care are best studied intersectionally, i.e. with sensitivity to how different power-axes work together. In particular, we study how digitalised care interacts with notions of place, age and gender, and how this affects the implications of e-health for patienthood and the reception of care.
Publications (3 of 3) Show all publications
Lindberg, J. & Lundgren, A. S. (2022). The affective atmosphere of rural life and digital healthcare: understanding older persons' engagement in eHealth services. Journal of Rural Studies (95), 77-85
Open this publication in new window or tab >>The affective atmosphere of rural life and digital healthcare: understanding older persons' engagement in eHealth services
2022 (English)In: Journal of Rural Studies, ISSN 0743-0167, E-ISSN 1873-1392, no 95, p. 77-85Article in journal (Refereed) Published
Abstract [en]

The implementation of digital healthcare technologies—eHealth—is presented as a solution to increasing costs, demographic changes, and quality issues in rural healthcare. Employing the concept of affective atmospheres, this article uses interviews to explore the emotional aspects of digital healthcare among rural persons of advanced age. Our results suggest that participants were clearly influenced by an affective atmosphere that was deeply embedded in spatial imageries as well as in notions of old age. Strong feelings of resignation, necessity, low entitlement, and defiance tended to encourage participants’ wishes for local face-to-face healthcare to translate into viewing eHealth solutions as positive. This also meant that participants came to enact neoliberal identities of “active ageing”. In conclusion, the concept of affective atmospheres highlights how human subjects and digital materialities interact in the production of human emotional responses to digital healthcare technologies, and emphasises how the conditions and shared imageries of geographic space and age are active components in that process.

Place, publisher, year, edition, pages
Elsevier, 2022
Keywords
Affective atmospheres, eHealth, Digital healthcare, Rural healthcare, Old age
National Category
Ethnology
Research subject
Ethnology
Identifiers
urn:nbn:se:umu:diva-198720 (URN)10.1016/j.jrurstud.2022.07.020 (DOI)000848078800008 ()2-s2.0-85136197296 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2017-00666EU, Horizon 2020, 643850
Available from: 2022-08-19 Created: 2022-08-19 Last updated: 2023-09-05Bibliographically approved
Rasi, P., Lindberg, J. & Airola, E. (2021). Older service users’ experiences of learning to use eHealth applications in sparsely populated healthcare settings in Northern Sweden and Finland. Educational gerontology, 47(1), 25-35
Open this publication in new window or tab >>Older service users’ experiences of learning to use eHealth applications in sparsely populated healthcare settings in Northern Sweden and Finland
2021 (English)In: Educational gerontology, ISSN 0360-1277, E-ISSN 1521-0472, Vol. 47, no 1, p. 25-35Article in journal (Refereed) Published
Abstract [en]

This research seeks to better understand how older people living in sparsely populated areas learn and then use eHealth applications in their everyday lives. The study was conducted in northern Sweden and Lapland in northern Finland, the most sparsely populated areas in these countries. The study focused on the use of following eHealth services: a medication-dispensing service, a virtual health room and a self-monitoring system. Research data were collected through semi-structured interviews and observations. The study included 19 participants, aged from 63 to 89 years. The following research questions guided the study: In what ways was the respondents’ learning and use of the eHealth service a social practice? How are such practices affected by cultural identities? The results show that digital self-care technologies can be very user friendly, easy to use, and sometimes, require very little learning effort from older users. However, the results also show that engaging in eHealth and learning how to use digital self-help services requires constant learning of different competences, not just digital but also competences that are medical and administrative. In addition, the use of eHealth required support from the respondents’ children, grandchildren, neighbors, and friends. Therefore, the digital self-care technologies contributed to a broader redistribution of responsibility from individual users and health and social care to informal support networks surrounding the respondents. Finally, the results indicated that respondents’ motives for learning and using the digital services often expressed cultural identities that affected such conceptions.

Place, publisher, year, edition, pages
Milton Park: Taylor & Francis, 2021
National Category
Other Social Sciences
Research subject
Social Medicine; digital humanities
Identifiers
urn:nbn:se:umu:diva-177214 (URN)10.1080/03601277.2020.1851861 (DOI)000592040200001 ()2-s2.0-85096579359 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2017-02304EU, Horizon 2020, 643850Forte, Swedish Research Council for Health, Working Life and Welfare, 2017-00666Forte, Swedish Research Council for Health, Working Life and Welfare, 2013-2056
Available from: 2020-12-02 Created: 2020-12-02 Last updated: 2023-03-24Bibliographically approved
Lundgren, A. S., Lindberg, J. & Carlsson, E. (2021). "Within the hour" and "wherever you are": Exploring the promises of digital healthcare apps. Journal of Digital Social Research (JDSR), 3(3), 32-59
Open this publication in new window or tab >>"Within the hour" and "wherever you are": Exploring the promises of digital healthcare apps
2021 (English)In: Journal of Digital Social Research (JDSR), E-ISSN 2003-1998, Vol. 3, no 3, p. 32-59Article in journal (Refereed) Published
Abstract [en]

The use of healthcare apps for medical advice is becoming increasingly common. This paper explores apps that offer interaction with medical experts. Working from the supposition that digital technologies are intimately entangled in their cultural context, we argue that the apps do more than just neutrally mediate contacts and offer medical and psychological advice. The article addresses the cultural dimensions of healthcare apps and answers questions about the ways in which such apps contribute to forming changing notions of what “healthcare” and being a “patient” entail. Three popular Swedish apps and their marketing material is studied using a discursive interface analysis of the apps’ affordances. The results show that the apps significantly contribute to producing a marketable narrative about app health care that includes accessibility, security/safety and personalisation, and which is partly produced as an alternative to what is offered by Swedish public health care. The results further show that this narrative primarily represents and addresses users who are young, busy, urban consumers of care – partly contrasting policy expectations and hopes.

Place, publisher, year, edition, pages
Umeå University, 2021
Keywords
healthcare apps, discursive interface analysis, affordances, e-health, digital health care, critical digital health studies, patient positions
National Category
Ethnology Media and Communications
Research subject
Ethnology; media and communication studies
Identifiers
urn:nbn:se:umu:diva-188972 (URN)10.33621/jdsr.v3i3.77 (DOI)2-s2.0-105009885067 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2021-10-28 Created: 2021-10-28 Last updated: 2025-07-14Bibliographically approved
Principal InvestigatorLundgren, Anna Sofia
Coordinating organisation
Umeå University
Funder
Period
2018-01-01 - 2020-12-31
National Category
Ethnology
Identifiers
DiVA, id: project:651Project, id: 2017-00666_Forte

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