Umeå University's logo

umu.sePublikasjoner
Endre søk
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Effects of person-centered information for parents of children with cancer (the PIFBO study): a randomized controlled trial
Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad. Clinical Department of Pediatrics, Umeå University Hospital, Umeå, Sweden; Department of Health Sciences, Karlstad University, Karlstad, Sweden.ORCID-id: 0000-0001-8801-5423
CHILD Research Group, Department of Nursing, School of Health and Welfare, Jönköping, Sweden.ORCID-id: 0000-0001-6419-2417
Department of Health Sciences, Karlstad University, Karlstad, Sweden;Department of Bachelor Education, Lovisenberg Diaconal University College, Oslo, Norway.
2023 (engelsk)Inngår i: Journal of Pediatric Hematology/Oncology Nursing, ISSN 2752-7530, E-ISSN 2752-7549, Vol. 40, nr 6, s. 400-410Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Background: Conveying information to parents is a core part of pediatric oncology nursing; however, most published interventions do not tailor information to individual parental needs. Objective: To evaluate the effect on parental illness-related stress of person-centered information provided to parents of children with cancer.

Methods: A multicenter, unblinded randomized controlled trial with two parallel arms recruiting parents of children diagnosed within the past two months from two tertiary children's cancer centers in Sweden. Parents were randomized using sealed envelopes prepared and opened by an independent person. Parents in the intervention arm met four times with experienced nurses trained in the intervention, whereas controls received standard care. The effect of the intervention was measured five times regarding parents’ illness-related stress. Secondary outcomes were psychosocial states, experiences with healthcare providers, and received information. Further, we collected process data on the intervention's content and fidelity.

Results: Of the 32 parents included and analyzed in the study, 16 were randomized to the intervention, which addressed a broad variety of topics. The intervention increased parents’ knowledge about the biophysiological and functional aspects of their child's illness, but it had no measurable effect on their distress.

Discussion: Although fidelity to the intervention protocol was sufficient, the study was flawed by recruitment difficulties, primarily due to organizational factors, which may have prevented us from observing any possible effects on psychosocial distress. Having a person-centered perspective could be promising for future studies aimed at parents of children with cancer.

sted, utgiver, år, opplag, sider
Sage Publications, 2023. Vol. 40, nr 6, s. 400-410
Emneord [en]
parents, person-centered information, questionnaires, randomized controlled study
HSV kategori
Forskningsprogram
omvårdnadsforskning med samhällsvetenskaplig inriktning
Identifikatorer
URN: urn:nbn:se:umu:diva-204389DOI: 10.1177/27527530221115860ISI: 000921986100001PubMedID: 36731493Scopus ID: 2-s2.0-85147513006OAI: oai:DiVA.org:umu-204389DiVA, id: diva2:1733727
Forskningsfinansiär
Swedish Childhood Cancer Foundation, PR20130086Tilgjengelig fra: 2023-02-03 Laget: 2023-02-03 Sist oppdatert: 2023-12-20bibliografisk kontrollert

Open Access i DiVA

fulltext(734 kB)29 nedlastinger
Filinformasjon
Fil FULLTEXT03.pdfFilstørrelse 734 kBChecksum SHA-512
96cd32e131c31df95482e839f8057a792761e1252c160249cbf9f24ac3547e4dadaaa6a5f8c7fd90456a2f311b4b5d2e0db7c40488908ec780a84a128fa8c0ff
Type fulltextMimetype application/pdf

Andre lenker

Forlagets fulltekstPubMedScopus

Person

Ringnér, Anders

Søk i DiVA

Av forfatter/redaktør
Ringnér, AndersBjörk, Maria
Av organisasjonen
I samme tidsskrift
Journal of Pediatric Hematology/Oncology Nursing

Søk utenfor DiVA

GoogleGoogle Scholar
Totalt: 117 nedlastinger
Antall nedlastinger er summen av alle nedlastinger av alle fulltekster. Det kan for eksempel være tidligere versjoner som er ikke lenger tilgjengelige

doi
pubmed
urn-nbn

Altmetric

doi
pubmed
urn-nbn
Totalt: 180 treff
RefereraExporteraLink to record
Permanent link

Direct link
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annet format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annet språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf