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Cripping the co-design of pacing technologies for energy-limiting conditions
Department of Computer Science, University of Copenhagen, Copenhagen, Denmark.ORCID-id: 0000-0003-1389-8246
Department of Computer Science, University of Copenhagen, Copenhagen, Denmark.ORCID-id: 0009-0004-4876-1893
Umeå universitet, Samhällsvetenskapliga fakulteten, Institutionen för informatik.ORCID-id: 0000-0002-3334-9239
2025 (engelsk)Inngår i: CHI '25: Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems, Association for Computing Machinery (ACM), 2025, artikkel-id 1010Konferansepaper, Publicerat paper (Fagfellevurdert)
Abstract [en]

People with energy-limiting conditions, such as chronic fatigue syndrome (ME/CFS) and Long COVID, need to limit their activity levels and balance exertion with rest and restorative activities. This practice is known as “pacing”. There is an opportunity for technology to help people with this process, but conducting research with this population can be difficult given their limited and unpredictable energy levels. This research explores how we can use crip theory to inform the development of co-design methods suitable for this cohort, and as an analytical lens to explore how these tools should be designed outside of normative and abelist assumptions about fatigue and productivity. This is done through a 5 week Asynchronous Remote Community study utilising various co-design techniques. These findings point to future designs of pacing technologies and contribute insights about developing more accessible approaches to conducting research with people with energy-limiting conditions.

sted, utgiver, år, opplag, sider
Association for Computing Machinery (ACM), 2025. artikkel-id 1010
Emneord [en]
chronic fatigue syndrome, co-design, crip theory, long COVID, ME/CFS, pacing, post-COVID syndrome, self-tracking technologies
HSV kategori
Identifikatorer
URN: urn:nbn:se:umu:diva-244207DOI: 10.1145/3706598.3713990ISI: 001501412600069Scopus ID: 2-s2.0-105005723655ISBN: 979-8-4007-1394-1 (digital)OAI: oai:DiVA.org:umu-244207DiVA, id: diva2:1998136
Konferanse
CHI 2025, Conference on Human Factors in Computing Systems, Yokohama, Japan, 26 April - 1 May, 2025
Forskningsfinansiär
Wallenberg AI, Autonomous Systems and Software Program – Humanity and Society (WASP-HS)Tilgjengelig fra: 2025-09-15 Laget: 2025-09-15 Sist oppdatert: 2025-09-18bibliografisk kontrollert

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Kaklopoulou, Irene

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