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What matters to you?: Free-text comments in a questionnaire from patients undergoing radiotherapy
Umeå universitet, Medicinska fakulteten, Institutionen för strålningsvetenskaper, Radiofysik.
Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad.ORCID-id: 0000-0002-1248-5581
Umeå universitet, Medicinska fakulteten, Institutionen för strålningsvetenskaper, Radiofysik.ORCID-id: 0000-0002-8971-9788
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2020 (Engelska)Ingår i: Technical Innovations & Patient Support in Radiation Oncology, ISSN 2405-6324, Vol. 13, s. 11-16Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background: Most cancer patients undergo external radiotherapy (RT) at some stage during their treatment trajectory and RT is often associated with unfamiliar procedures in a highly technical environment. The purpose of this study was to explore how patients experience RT and the related processes, as described in free-text comments in a large Swedish survey with questionnaires including items on psychosocial climate and treatment environment.

Methods: The data consisted of free-text comments from one open-ended question: "Is there anything else you want us to know" and were analysed using qualitative content analysis.

Results: Of 825 returned questionnaires, 261 contained free-text comments from patients (32%). The hand-written, free-text comments reflected the patients' experience of the RT process and were abstracted into the four major categories with sub-categories: experiencing the high-tech RT environment, understanding the RT procedures and side effects, dealing with daily life during RT, and the nurses' role and performance. The categories reflect the patients' experiences and emphasize how important it is to evaluate what really matters to the patients when changing procedures, practices, and how to minimize disturbances in the patients' daily lives.

Conclusion: The main conclusions from this study are that the involvement of patients in choosing daily appointment times, providing good information during the RT process to make the patients feel safe, experience and attitude of the staff and respect for the patient's autonomy are highly ranked values for patients. An implementation of person-centred care may help relieve many of these problems.

Ort, förlag, år, upplaga, sidor
Elsevier, 2020. Vol. 13, s. 11-16
Nyckelord [en]
Patient experience, Qualitative research, Questionnaire, Radiotherapy
Nationell ämneskategori
Omvårdnad
Identifikatorer
URN: urn:nbn:se:umu:diva-182323DOI: 10.1016/j.tipsro.2019.11.009PubMedID: 32128457Scopus ID: 2-s2.0-85105118397OAI: oai:DiVA.org:umu-182323DiVA, id: diva2:1545306
Forskningsfinansiär
VinnovaTillgänglig från: 2021-04-19 Skapad: 2021-04-19 Senast uppdaterad: 2024-07-02Bibliografiskt granskad

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Olausson, KristinaFransson, PerNyholm, TufveZackrisson, Björn

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