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Legitimizing user knowledge in mental health services: epistemic (in)justice and barriers to knowledge integration
Department of Social and Psychological Studies, Karlstad University, Karlstad, Sweden.
Umeå universitet, Samhällsvetenskapliga fakulteten, Institutionen för socialt arbete.ORCID-id: 0000-0002-8755-3710
NSPH National Association, Stockholm, Sweden.
NSPH Skåne, Malmö, Sweden.
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2022 (Engelska)Ingår i: Frontiers in Psychiatry, E-ISSN 1664-0640, Vol. 13, artikel-id 981238Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Including the voices and knowledge of service users is essential for developing recovery-oriented and evidence-based mental health services. Recent studies have however, suggested that challenges remain to the legitimization of user knowledge in practice. To further explore such challenges, a co-production study was conducted by a team of researchers and representatives from user organizations in Sweden. The aim of the study was to explore the barriers and facilitators to the legitimacy of user knowledge, as a central factor in sustainably implementing user influence in mental health practice. A series of workshops, with representatives of mental health services and user organizations were conducted by the research team to explore these issues. The analysis built on the theoretical framework of epistemic injustice, and the underlying aspects, testimonial, hermeneutic and participation-based injustice, were utilized as a framework for a deductive analysis. Results suggest that this is a useful model for exploring the complex dynamics related to the legitimacy of user knowledge in mental health systems. The analysis suggests that the legitimacy of user knowledge is related to the representativeness of the knowledge base, the systematic formulation of this knowledge in applicable methods, access to resources and positions within the mental health system and participation in the process of integrating this knowledge-base in mental health contexts. Legitimizing user knowledge in practice additionally challenges mental health systems to support readiness for change in working environments and to address the power and role issues that these changes involve.

Ort, förlag, år, upplaga, sidor
Frontiers Media S.A., 2022. Vol. 13, artikel-id 981238
Nyckelord [en]
mental health services, user involvement, co-production in research, epistemic injustice, user organizations, implementation, recovery
Nationell ämneskategori
Annan samhällsvetenskap Sociologi Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi
Identifikatorer
URN: urn:nbn:se:umu:diva-198973DOI: 10.3389/fpsyt.2022.981238ISI: 000852169600001PubMedID: 36090358Scopus ID: 2-s2.0-85138003423OAI: oai:DiVA.org:umu-198973DiVA, id: diva2:1691306
Projekt
Challenges and opportunities for establishing user influence – Legitimizing experiential knowledge as a resource in social psychiatry
Forskningsfinansiär
Forte, Forskningsrådet för hälsa, arbetsliv och välfärd, 2020-01297Tillgänglig från: 2022-08-29 Skapad: 2022-08-29 Senast uppdaterad: 2024-01-17Bibliografiskt granskad

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Näslund, HildaRosenberg, David

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