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Managing everyday life: Self-management strategies people use to live well with neurological conditions
Umeå University, Faculty of Medicine, Department of Nursing. Department of Nursing Science, Mid Sweden University, Sweden.
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2021 (English)In: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134, Vol. 104, no 2, p. 413-421Article in journal (Refereed) Published
Abstract [en]

Objective: This paper uses the Taxonomy of Everyday Self-management Strategies (TEDSS) to provideinsight and understanding into the complex and interdependent self-management strategies peoplewith neurological conditions use to manage everyday life.

Methods: As part of a national Canadian study, structured telephone interviews were conducted monthlyfor eleven months, with 117 people living with one or more neurological conditions. Answers to fiveopen-ended questions were analyzed using qualitative content analysis. A total of 7236 statements wereanalyzed.

Results: Findings are presented in two overarching patterns: 1) self-management pervades all aspects oflife, and 2) self-management is a chain of decisions and behaviours. Participants emphasizedmanagement of daily activities and social relationships as important to maintaining meaning in theirlives.

Conclusion: Managing everyday life with a neurological condition includes a wide range of diversestrategies that often interact and complement each other. Some people need to intentionally manageevery aspect of everyday life.

Practice implications: For people living with neurological conditions, there is a need for health providersand systems to go beyond standard advice for self-management. Self-management support is besttailored to each individual, their life context and the realities of their illness trajectory.

Place, publisher, year, edition, pages
Elsevier, 2021. Vol. 104, no 2, p. 413-421
Keywords [en]
Neurological conditions, Patient experience, Qualitative research, Self-management, Self-care, TEDSS, Chronic conditions
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-174378DOI: 10.1016/j.pec.2020.07.025ISI: 000614149200028PubMedID: 32819756Scopus ID: 2-s2.0-85089520856OAI: oai:DiVA.org:umu-174378DiVA, id: diva2:1459838
Available from: 2020-08-21 Created: 2020-08-21 Last updated: 2021-07-06Bibliographically approved

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Audulv, Åsa

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