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Personhood in aloneness and in affinity: satisfactory social participation among home care recipients
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Section of Occupational Therapy.ORCID iD: 0000-0002-0729-5361
Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Huddinge, Sweden.ORCID iD: 0000-0003-1727-369X
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Section of Occupational Therapy.ORCID iD: 0000-0002-8265-5769
2022 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 29, no 7, p. 563-577Article in journal (Refereed) Published
Abstract [en]

Background: Social participation can be described as engaging in activities that provide interaction with others, and support for social participation may reduce loneliness and improve health. However, there is limited knowledge about social participation in a home care context.

Aim: To explore the perceptions and experiences of community-dwelling older adults with regard to aspects related to social participation in a home care context.

Materials and methods: Seven home care recipients, aged 79-94 years, from two Swedish municipalities participated in semi-structured interviews. The interviews were analyzed using qualitative content analysis.

Results: The study identified the central theme, Personhood in aloneness and in affinity, as important in accomplishing satisfactory social participation. The results incorporated cultivating personal interests and navigating occupations, as well as having one's needs seen and experiencing mutuality in social encounters.

Conclusions: The study nuances existing knowledge about social participation among older home care recipients, and the findings strengthen the importance of framing a home care environment where recipients can cultivate personhood and be recognized as valuable individuals with relevant needs.

Significance: This study extends current understandings of the variety and richness of the social participation and occupational engagement enjoyed by older home care recipients, to be considered in research and practice.

Place, publisher, year, edition, pages
Taylor & Francis, 2022. Vol. 29, no 7, p. 563-577
Keywords [en]
Older adults, togetherness, agency, community dwelling older adults, social participation, loneliness, home care services, occupational identity, interdependence
National Category
Occupational Therapy
Identifiers
URN: urn:nbn:se:umu:diva-177736DOI: 10.1080/11038128.2020.1849394ISI: 000593095300001PubMedID: 33245667Scopus ID: 2-s2.0-85096836015OAI: oai:DiVA.org:umu-177736DiVA, id: diva2:1511347
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2016-07089Available from: 2020-12-18 Created: 2020-12-18 Last updated: 2023-04-03Bibliographically approved
In thesis
1. Harnessing togetherness: perceptions of loneliness and promotion of social participation in the home care context
Open this publication in new window or tab >>Harnessing togetherness: perceptions of loneliness and promotion of social participation in the home care context
2023 (English)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[sv]
Att fånga känslan av gemenskap : uppfattningar av ensamhet och främjande av social delaktighet i hemtjänstkontext
Abstract [en]

Introduction: It is well known that older adults have a higher risk for loneliness, which is detrimental to health. Home care in Sweden has a responsibility to address social needs, but systematic approaches are lacking and there is a know–do gap. The overall aim of this thesis was to develop knowledge about older home care recipients’ and home care providers' perceptions of loneliness and social participation among older adults, and furthermore, to develop a work model for supporting social participation in home care and explore that process.

Methods: Four studies were included. In the first study, care recipient interviews explored perceptions of social participation. In the second, a total population survey investigated the association between perceived care quality and loneliness. The third study used individual and group interviews with home care providers to explore discourses on loneliness and social support. The fourth applied a participatory action research(PAR) process with care workers to develop strategies to alleviate care recipients’ loneliness.

Findings: Enjoying personally relevant occupations, both in solitude and with others, was found to be important for satisfactory social participation. Low perceived quality in home care quality was statistically associated with loneliness. Two discourses, one in which care recipients were described as valued but vulnerable “others”, and another in which they were described as competent peers, were identified. A work model facilitating social participation was created, and the process was applied to a “framework for occupational enablement for change in community practice”.

Conclusion: The understanding of loneliness and social participation in the complex home care context has been nuanced, as have discourses that affect home care practice. The work model itself could become a first step towards systematically addressing loneliness and social needs, and the application of an occupational enablement framework onto the PAR process ties the methodologies together and facilitates participatory research for occupational therapy and science.

Place, publisher, year, edition, pages
Umeå: Umeå University, 2023. p. 100
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 2236
Keywords
Loneliness, Older adults, Home care services, Home care delivery, Social participation
National Category
Social Work Occupational Therapy Nursing
Research subject
Occupational therapy
Identifiers
urn:nbn:se:umu:diva-206318 (URN)978-91-8070-043-6 (ISBN)978-91-8070-044-3 (ISBN)
Public defence
2023-04-28, Rotundan, Universumhuset, Universums gränd 8, Umeå, 09:00 (Swedish)
Opponent
Supervisors
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2016-07089
Available from: 2023-04-06 Created: 2023-04-03 Last updated: 2023-04-04Bibliographically approved

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Nordin, ThereseNilsson, Ingeborg

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