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Real-world Follow-up Practice of Children With Coeliac Disease: A Cross-sectional Study From Western Sweden
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Family Medicine.ORCID iD: 0000-0003-2478-9598
2022 (English)In: JPGN Reports, E-ISSN 2691-171X, Vol. 3, no 2, article id e191Article in journal (Refereed) Published
Abstract [en]

Coeliac disease (CD) is one of the most common chronic diseases of childhood. Follow-up of CD aims to ensure dietary adherence and prevent disease complications, but there are few real-world data on how its management in children is conducted. This study aimed to survey the follow-up practice of pediatric CD in Western Sweden. Two web-based surveys were distributed to all 22 pediatric outpatient clinics rendering answers from 48 physicians and 12 dietitians. Overall, clinical practice was similar throughout the region and in line with national and international CD guidelines, including an annual to biannually follow-up frequency and dietary adherence assessment through unstructured interviewing and serology measurements. The study identified possible areas of improvement, such as implementing a formal transition process to adult care and the use of validated questionaries to assess dietary adherence. Additionally, a positive attitude towards electronic-health technologies (eHealth) as part of CD follow-up was identified.

Place, publisher, year, edition, pages
Wolters Kluwer, 2022. Vol. 3, no 2, article id e191
Keywords [en]
celiac disease, children, follow-up, adherence
National Category
Pediatrics General Practice Gastroenterology and Hepatology
Identifiers
URN: urn:nbn:se:umu:diva-193245DOI: 10.1097/pg9.0000000000000191OAI: oai:DiVA.org:umu-193245DiVA, id: diva2:1646406
Available from: 2022-03-22 Created: 2022-03-22 Last updated: 2025-02-11Bibliographically approved

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Myléus, Anna

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CiteExportLink to record
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Citation style
  • apa
  • ieee
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