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Effects of person-centered information for parents of children with cancer (the PIFBO study): a randomized controlled trial
Umeå University, Faculty of Medicine, Department of Nursing. Clinical Department of Pediatrics, Umeå University Hospital, Umeå, Sweden; Department of Health Sciences, Karlstad University, Karlstad, Sweden.ORCID iD: 0000-0001-8801-5423
CHILD Research Group, Department of Nursing, School of Health and Welfare, Jönköping, Sweden.ORCID iD: 0000-0001-6419-2417
Department of Health Sciences, Karlstad University, Karlstad, Sweden;Department of Bachelor Education, Lovisenberg Diaconal University College, Oslo, Norway.
2023 (English)In: Journal of Pediatric Hematology/Oncology Nursing, ISSN 2752-7530, E-ISSN 2752-7549, Vol. 40, no 6, p. 400-410Article in journal (Refereed) Published
Abstract [en]

Background: Conveying information to parents is a core part of pediatric oncology nursing; however, most published interventions do not tailor information to individual parental needs. Objective: To evaluate the effect on parental illness-related stress of person-centered information provided to parents of children with cancer.

Methods: A multicenter, unblinded randomized controlled trial with two parallel arms recruiting parents of children diagnosed within the past two months from two tertiary children's cancer centers in Sweden. Parents were randomized using sealed envelopes prepared and opened by an independent person. Parents in the intervention arm met four times with experienced nurses trained in the intervention, whereas controls received standard care. The effect of the intervention was measured five times regarding parents’ illness-related stress. Secondary outcomes were psychosocial states, experiences with healthcare providers, and received information. Further, we collected process data on the intervention's content and fidelity.

Results: Of the 32 parents included and analyzed in the study, 16 were randomized to the intervention, which addressed a broad variety of topics. The intervention increased parents’ knowledge about the biophysiological and functional aspects of their child's illness, but it had no measurable effect on their distress.

Discussion: Although fidelity to the intervention protocol was sufficient, the study was flawed by recruitment difficulties, primarily due to organizational factors, which may have prevented us from observing any possible effects on psychosocial distress. Having a person-centered perspective could be promising for future studies aimed at parents of children with cancer.

Place, publisher, year, edition, pages
Sage Publications, 2023. Vol. 40, no 6, p. 400-410
Keywords [en]
parents, person-centered information, questionnaires, randomized controlled study
National Category
Nursing
Research subject
caring sciences in social sciences
Identifiers
URN: urn:nbn:se:umu:diva-204389DOI: 10.1177/27527530221115860ISI: 000921986100001PubMedID: 36731493Scopus ID: 2-s2.0-85147513006OAI: oai:DiVA.org:umu-204389DiVA, id: diva2:1733727
Funder
Swedish Childhood Cancer Foundation, PR20130086Available from: 2023-02-03 Created: 2023-02-03 Last updated: 2023-12-20Bibliographically approved

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Ringnér, Anders

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