Umeå University's logo

umu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
What was on the parents' minds?: Changes over time in topics of person-centred information for mothers and fathers of children with cancer
Umeå University, Faculty of Medicine, Department of Nursing. Department of Health Sciences, Karlstad University, Karlstad, Sweden.ORCID iD: 0000-0001-8801-5423
CHILD Research Group, Department of Nursing, School of Health and Welfare, Jönköping, Sweden.
Department of Health Sciences, Karlstad University, Karlstad, Sweden; Department of Bachelor in Nursing, Lovisenberg Diaconal University College, Oslo, Norway.
2023 (English)In: Comprehensive Child and Adolescent Nursing, ISSN 2469-4207, E-ISSN 2469-4193, Vol. 46, no 2, p. 114-125Article in journal (Refereed) Published
Abstract [en]

Acquiring information about one's child's cancer diagnosis is a complex and ever-changing process, and parents' needs change over time. As yet, we know little about what information parents require at different stages of their child's illness. This paper is part of a larger randomized control trial studying the parent-centered information given to mothers and fathers. The aim of this paper was to describe the topics addressed in person-centered meetings between nurses and parents of children with cancer and how those changed over time. Using qualitative content analysis, we analyzed nurses' written summaries of 56 meetings with 16 parents and then computed for each topic the percentage of parents who brought it up at any time during the intervention. The main categories were Child's disease and treatment (addressed by 100% of parents), Consequences of treatment (88%), Emotional management for the child (75%), Emotional management for the parent (100%), Social life of the child (63%), and Social life of the parent (100%). Different topics were addressed at different points in time, and fathers raised more concerns about the child's emotional management and the consequences of treatment than mothers. This paper suggests that parental information demands change over time and differ between fathers and mothers, implying that information should be person-centered. Registered at Clinicaltrials.gov (NCT02332226).

Place, publisher, year, edition, pages
Taylor & Francis, 2023. Vol. 46, no 2, p. 114-125
Keywords [en]
childhood cancer, Parents, person-centered information, process evaluation
National Category
Nursing Pediatrics Cancer and Oncology
Identifiers
URN: urn:nbn:se:umu:diva-205346DOI: 10.1080/24694193.2023.2168790ISI: 000935248300001PubMedID: 36811905Scopus ID: 2-s2.0-85148661261OAI: oai:DiVA.org:umu-205346DiVA, id: diva2:1748353
Funder
Swedish Childhood Cancer Foundation, PR2013-0068Available from: 2023-04-03 Created: 2023-04-03 Last updated: 2023-08-17Bibliographically approved

Open Access in DiVA

fulltext(793 kB)54 downloads
File information
File name FULLTEXT02.pdfFile size 793 kBChecksum SHA-512
f08916f1dc6ab1cffa1b343393a2dab4eee7d2bada55d8506c408b23bb3ac54cfc4e8d30159d311c346f6e7f018e08c263e39b04c6dcb12ebc3bad7f91a5fc19
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records

Ringnér, Anders

Search in DiVA

By author/editor
Ringnér, Anders
By organisation
Department of Nursing
In the same journal
Comprehensive Child and Adolescent Nursing
NursingPediatricsCancer and Oncology

Search outside of DiVA

GoogleGoogle Scholar
Total: 76 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 244 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf