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Making the BEST Decision - the BESTa Project: description of the design and alpha phases as part of the development of a digital decision aid for cancer screening in Sweden
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Alfred Nobels Allé 23, Huddinge, Sweden; Theme Cancer, Hereditary Cancer Clinic, Karolinska University Hospital, Stockholm, Sweden.
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Alfred Nobels Allé 23, Huddinge, Sweden.
School of Health and Welfare, Jönköping University, Jönköping, Sweden.
Team Advies en Onderzoek, Municipal Health Service (GGD) Kennemerland, Haarlem, Netherlands.
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2025 (English)In: Journal of Cancer Education, ISSN 0885-8195, E-ISSN 1543-0154Article in journal (Refereed) Epub ahead of print
Abstract [en]

A digital decision aid for cancer screening can gather balanced information in one place and give individuals the opportunity to elucidate their knowledge, values and engage in shared decision-making. Research shows that ethnic minorities and individuals with various functional limitations participate in cancer screening to a lower extent, hence our ambition to make the decision aid as available and applicable as possible, regardless of end-users’ traits. The aim was to describe the design and alpha phases of the development of a digital decision aid for CRC screening and tentative end-users’ perceptions. Based on a scientific framework for development of decision aids, participants were recruited through multiple channels. The decision aid was evaluated in two steps, a paper version (design phase) and a website prototype (alpha phase), using the think-aloud approach. Data were rich with detailed suggestions for improvements of the decision aid and how it was perceived. A positive outlook on the decision aid was common. Certain words, wordings or visual features were considered difficult and worry or anxiety, related to the content, were expressed. The variation in the findings illustrates the challenges of decision aid development. Still, our findings emphasise the importance of designing a decision aid in co-creation with its end-users. Developing a digital decision aid is complex, why a well-established framework is essential. With the goal of an equal healthcare system, the inclusion of individuals with diverse backgrounds and functional limitations should not only be a fundamental aspect of all research, but a prerequisite.

Place, publisher, year, edition, pages
2025.
Keywords [en]
Decision Making, Shared, Decision support techniques, Early detection of cancer, Health promotion, Public health
National Category
Cancer and Oncology
Identifiers
URN: urn:nbn:se:umu:diva-238474DOI: 10.1007/s13187-025-02633-yISI: 001476176500001PubMedID: 40285812Scopus ID: 2-s2.0-105003554622OAI: oai:DiVA.org:umu-238474DiVA, id: diva2:1957064
Available from: 2025-05-08 Created: 2025-05-08 Last updated: 2025-05-08Bibliographically approved

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Franklin, Karl A.

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