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The feeling that I'm unimportant: epistemic injustice lens on formal support for women with disabilities survivors of intimate partner violence
Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health.ORCID iD: 0000-0002-4278-7089
Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health.ORCID iD: 0000-0002-8114-4705
Umeå University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0001-9590-777X
Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health.ORCID iD: 0000-0001-5471-9043
2026 (English)In: Journal of Gender-Based Violence, ISSN 2398-6808, E-ISSN 2398-6816, Vol. 10, no 1, p. 171-188Article in journal (Refereed) Published
Abstract [en]

Intimate partner violence is a pervasive injustice that affects one in three women globally. Women experiencing intimate partner violence require immediate, compassionate and nonjudgemental support, not only to prevent negative outcomes and aid in recovery but also to encourage functionality and resilience. However, maintaining equitable relationships during the support-seeking process poses challenges. Formal support can either validate or contribute to re-victimisation, thereby influencing the rectification or reinforcement of injustices. This article explores the experiences of women with disabilities seeking formal support relating to intimate partner violence, utilising an epistemic injustice lens. The focus is on formal support in Sweden, delivered by professionals in healthcare, social services, the police, women's shelters, and the Centre against Violence (centrum mot v & aring;ld). Employing reflexive thematic analysis guided by epistemic injustice as a theoretical framework, the results reveal instances of epistemic injustice. Participants expressed feelings of marginalisation, unheard voices, mistrust and misunderstanding within a formal support system they described as unintelligible and fragmented. Continuous scrutiny of the support-seeking process, coupled with improvements in the capacity of support providers and a re-evaluation of guidelines and procedures, becomes essential to promote inclusivity for women with disabilities, thereby contributing to the achieving of epistemic justice.

Place, publisher, year, edition, pages
Bristol University Press, 2026. Vol. 10, no 1, p. 171-188
Keywords [en]
intimate partner violence, epistemic injustice, women with disabilities, formal support
National Category
Social Work
Identifiers
URN: urn:nbn:se:umu:diva-242760DOI: 10.1332/23986808Y2025D000000074ISI: 001434544500001Scopus ID: 2-s2.0-105029270449OAI: oai:DiVA.org:umu-242760DiVA, id: diva2:1987756
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2018-01841Marcus and Amalia Wallenberg Foundation, MAW 2019 0003Available from: 2025-08-07 Created: 2025-08-07 Last updated: 2026-03-02Bibliographically approved
In thesis
1. A bridge to safety – for whom?: intimate partner violence and formal support for women with disabilities in Sweden
Open this publication in new window or tab >>A bridge to safety – for whom?: intimate partner violence and formal support for women with disabilities in Sweden
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[en]
En väg till trygghet — för vem? : våld i nära relationer och  samhällets stöd till kvinnor med funktionsnedsättning i Sverige
Abstract [en]

Aim: This thesis explores the lived experiences of women with disabilities subjected to intimate partner violence (IPV) and assesses support providers’ readiness and self-perceived competence to support them. It applies an intersectional and epistemic injustice lens to understand how gender, disability, and structural aspects shape both experiences of IPV and institutional responses.

Methods: This study employed both qualitative and quantitative methods and comprises two sub-studies. The first sub-study involved in-depth interviews with 11 women with disabilities who had experienced IPV and sought support from various formal support institutions, including the police, social services, shelters, healthcare, and the Centre against Violence. Their narratives were analyzed using reflexive thematic analysis. The second sub-study assessed the perspectives of support providers through a nationwide survey (N=1,151) and 18 qualitative interviews, focusing on their self-perceived competence and readiness to support women with disabilities subjected to IPV.

Findings: The women with disabilities interviewed reported experiencing multiple forms of IPV — physical, psychological, sexual, economic, digital — and disability-specific abuse, often extending beyond intimate partners to others in their intimate personal spaces. They described psychological abuse as being particularly harmful yet often overlooked in institutional responses. The women’s experiences were marked by testimonial injustice, where their credibility was undermined and hermeneutical injustice, where support systems lacked the conceptual and structural frameworks needed to understand and respond to their needs. Support providers indicated that IPV and disability-specific training enhanced their self-perceived competence. However, where disability-specific guidelines existed, they were inconsistently followed. Readiness to support women with disabilities was shaped not only by individual training but also by systemic and organizational factors, including employer support, the presence of clear routines and guidelines, collaboration within and between institutions, and adaptations to ensure accessibility.

Conclusions: This thesis underscores the need for structural reforms to ensure disability inclusion in IPV support services. Tailored guidelines, meaningful accessibility, institutional collaboration, and recognition of disabled women as credible knowers are essential.

Place, publisher, year, edition, pages
Umeå: Umeå University, 2025. p. 96
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 2377
Keywords
Intimate partner violence, women with disabilities, formal support, intersectionality, epistemic injustice, Sweden
National Category
Public Health, Global Health and Social Medicine Social Work
Research subject
Public health; Epidemiology
Identifiers
urn:nbn:se:umu:diva-243572 (URN)978-91-8070-768-8 (ISBN)978-91-8070-769-5 (ISBN)
Public defence
2025-09-19, 5B P6, Stora Hörsalen, Norrlands universitetssjukhus, Umeå, 09:00 (English)
Opponent
Supervisors
Funder
Wallenberg FoundationsForte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2025-08-29 Created: 2025-08-26 Last updated: 2025-09-30Bibliographically approved

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Anyango, CartrineGoicolea, IsabelLövgren, VeronicaNamatovu, Fredinah

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