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Cripping the co-design of pacing technologies for energy-limiting conditions
Department of Computer Science, University of Copenhagen, Copenhagen, Denmark.ORCID iD: 0000-0003-1389-8246
Department of Computer Science, University of Copenhagen, Copenhagen, Denmark.ORCID iD: 0009-0004-4876-1893
Umeå University, Faculty of Social Sciences, Department of Informatics.ORCID iD: 0000-0002-3334-9239
2025 (English)In: CHI '25: Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems, Association for Computing Machinery (ACM), 2025, article id 1010Conference paper, Published paper (Refereed)
Abstract [en]

People with energy-limiting conditions, such as chronic fatigue syndrome (ME/CFS) and Long COVID, need to limit their activity levels and balance exertion with rest and restorative activities. This practice is known as “pacing”. There is an opportunity for technology to help people with this process, but conducting research with this population can be difficult given their limited and unpredictable energy levels. This research explores how we can use crip theory to inform the development of co-design methods suitable for this cohort, and as an analytical lens to explore how these tools should be designed outside of normative and abelist assumptions about fatigue and productivity. This is done through a 5 week Asynchronous Remote Community study utilising various co-design techniques. These findings point to future designs of pacing technologies and contribute insights about developing more accessible approaches to conducting research with people with energy-limiting conditions.

Place, publisher, year, edition, pages
Association for Computing Machinery (ACM), 2025. article id 1010
Keywords [en]
chronic fatigue syndrome, co-design, crip theory, long COVID, ME/CFS, pacing, post-COVID syndrome, self-tracking technologies
National Category
Health Sciences Human Computer Interaction
Identifiers
URN: urn:nbn:se:umu:diva-244207DOI: 10.1145/3706598.3713990ISI: 001501412600069Scopus ID: 2-s2.0-105005723655ISBN: 979-8-4007-1394-1 (electronic)OAI: oai:DiVA.org:umu-244207DiVA, id: diva2:1998136
Conference
CHI 2025, Conference on Human Factors in Computing Systems, Yokohama, Japan, 26 April - 1 May, 2025
Funder
Wallenberg AI, Autonomous Systems and Software Program – Humanity and Society (WASP-HS)Available from: 2025-09-15 Created: 2025-09-15 Last updated: 2025-09-18Bibliographically approved

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Kaklopoulou, Irene

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Homewood, SarahHinkle, Claudia AKaklopoulou, Irene
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Citation style
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  • nn-NB
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Output format
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