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“Being kept alive—but not being supported to live”: experiences of general psychiatric inpatient care among persons with anorexia nervosa
Umeå University, Faculty of Medicine, Department of Nursing. Umeå University, Faculty of Social Sciences, Umeå Centre for Gender Studies (UCGS).
Department of Health, Education and Technology, Luleå University of Technology, Luleå, Sweden.
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation. Umeå University, Faculty of Medicine, Department of Clinical Sciences.ORCID iD: 0000-0003-2597-2466
Department of Health, Education and Technology, Luleå University of Technology, Luleå, Sweden.
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2025 (English)In: Journal of Eating Disorders, E-ISSN 2050-2974, Vol. 13, no 1, article id 282Article in journal (Refereed) Published
Abstract [en]

Background: Although anorexia nervosa has been the focus of numerous studies, most research has been conducted within specialized eating disorder services, where the primary emphasis is on food, weight and physical markers of illness. The condition is described as difficult to treat, with persons with anorexia nervosa portrayed as being dominated by the illness and hard to engage in care. Treatment approaches are often rigid and protocol-driven, particularly in inpatient settings, where the primary aim is to preserve life. Given the limited research on psychiatric inpatient care for anorexia nervosa in settings not specialized in eating disorder treatment this qualitative study aims to explore lived experiences of being treated for anorexia nervosa in the context of general psychiatric inpatient care. Methods: The study was conducted in Sweden between August and September 2023. Eighteen women participated. Seventeen submitted written narrative texts reflecting on their experiences, nine of whom also took part in individual interviews. Only one participant agreed to being interviewed only. Data were analysed using inductive qualitative content analysis, involving a systematic abstraction and interpretation of the textual content. Results: Findings revealed one main theme, Being kept alive—but not being supported to live; three themes, Being invisible as a person; Being chained by hopelessness; and Aiming to get on the road towards recovery; and eight subthemes, Lacking existential support; Having to stand up for myself; Being disconnected from real life; Being restricted; Being marked for life; Needing human connection; Finding ways to live; and Finding meaning and hope. Conclusion: The findings show that persons with anorexia nervosa may experience general psychiatric inpatient care as both life-saving and unsupportive. This calls for trauma-informed, recovery-oriented care that treats lived experience as essential expertise. Future work should focus on strategies to challenge entrenched assumptions in general psychiatric inpatient care and promote approaches that respect the complexity, autonomy, and meaning making of persons living with AN.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2025. Vol. 13, no 1, article id 282
Keywords [en]
Anorexia nervosa, Diagnostic identity, Hospitalization, Mental health, Personal recovery, Qualitative research
National Category
Psychiatry Nursing
Identifiers
URN: urn:nbn:se:umu:diva-247588DOI: 10.1186/s40337-025-01483-9ISI: 001635439300001PubMedID: 41339958Scopus ID: 2-s2.0-105024248812OAI: oai:DiVA.org:umu-247588DiVA, id: diva2:2023134
Available from: 2025-12-18 Created: 2025-12-18 Last updated: 2025-12-18Bibliographically approved

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Sandsten, AnnaStrömbäck, MariaLindgren, Britt-Marie

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Sandsten, AnnaStrömbäck, MariaLindgren, Britt-Marie
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Department of NursingUmeå Centre for Gender Studies (UCGS)Department of Community Medicine and RehabilitationDepartment of Clinical Sciences
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