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Validating WHOQOL-SRPB in Sweden: instrument adaption for measuring existential aspects of health-related quality of life [HRQL] in secular contexts
Umeå University, Faculty of Medicine, Department of Nursing. Åbo Akademi University, Finland.
Umeå University, Faculty of Medicine, Department of Nursing.
Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Family Medicine. Uppsala University.
2016 (English)In: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 25, no Suppl 1, p. 100-100, article id 1056Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Aims: To present the validation process of WHOQOL-SRPB andWHOQOL-SRPB BREF in Sweden, one of the most secular countriesin the world though multi-religious, thus emphasising the need forprerequisite adjustments for cultural validation of the spirituality,religiousness and personal beliefs facets [SRPB].

Methods: Theprocess adopted here follows WHO guidelines for translation andadaptation of instruments: Forward and Back translation, Pre-testing,Cognitive Interviewing, and Final version. Four bilingually and biculturally experienced researchers worked in two groups, comprisingexperience of either the Swedish translation of WHOQOL-100, -Brefand -OLD, or research into existential public health. Based on initialindependent translations from each, a final version was then developed through consensus translation, which was then back-translated.A pre-testing phase was conducted with individuals representingdifferent religious and non-religious worldviews. The final Swedishversion was completed by 170 persons, aging between 21 and 89(m = 46.6), with 105 women, and comprising both ‘‘healthy’’ individuals and individuals with mental health or somatic issues.

Results:It was found that the instruction and particularly SRPB items thatused religious terminology needed adjustment. For example, ‘‘Spiritual being’’ was replaced with ‘‘Spiritual dimension’’, ‘‘Belief’’ with‘‘Your belief/idea’’, and ‘‘higher and more powerful’’ (instructiontext) was translated to ‘‘force/power/dimension’’. The pre- test resultswere useful in this process, especially qualitative information fromindividuals representing secular existential worldviews includingdifferent philosophical and political traditions. The internal consistency reliability of the overall SRPB-module was high (alpha = .97)as well as for the 8 facets (alpha ranging .80–.97). Test- retest(n = 19) showed r = .83 (p\.01). There were strong correlationsbetween all facets, the overall SRPB-module, and the overall qualityof life general health perceptions. No difference was found betweenwomen and men in the overall SRPB-module but in the ‘‘Connect’’facet, women scored higher (p = .02) whereas in ‘‘Peace’’ menscored higher (p = .04).

Conclusions: The significance found throughusing existing translation/adaption guidelines, confirms that not onlyis it possible, but also relevant to include culturally validated existential aspects in studies of HRQL even in contexts that are largelysecular.

Place, publisher, year, edition, pages
Springer, 2016. Vol. 25, no Suppl 1, p. 100-100, article id 1056
National Category
Health Care Service and Management, Health Policy and Services and Health Economy Religious Studies
Identifiers
URN: urn:nbn:se:umu:diva-134294DOI: 10.1007/s11136-016-1390-7ISI: 000398451600241OAI: oai:DiVA.org:umu-134294DiVA, id: diva2:1094213
Conference
23rd Annual Conference of the International Society for Quality of Life Research, Copenhagen, Denmark, October 19-22, 2016
Available from: 2017-05-09 Created: 2017-05-09 Last updated: 2021-08-09Bibliographically approved

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Santamäki Fischer, ReginaNygren, BjörnDeMarinis, Valerie

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