Umeå universitets logga

umu.sePublikationer
Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care
Visa övriga samt affilieringar
2017 (Engelska)Ingår i: European Journal of Pediatrics, ISSN 0340-6199, E-ISSN 1432-1076, Vol. 176, nr 7, s. 881-889Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

The aim of the study was to explore what adolescents with congenital heart disease (CHD) view as important in the preparation for the transfer to adult care. We performed interviews in four focus groups with adolescents (14-18 years old) at four university hospitals in Sweden. Data was analysed using qualitative content analysis. The analysis revealed one main category; Becoming a manager of the condition and four subcategories; Sufficient knowledge about the health, Be a participant in the care, Parental support, and Communicate with others about the health. The adolescents' ages differentiated the discussion in the groups. The older adolescents seemed to have more interest in transition planning, information and transfer. The younger described more frustrations about communication and handling the disease. Conclusion: To become a manager of the CHD in daily life, the adolescents want disease specific knowledge, which should be communicated in a developmentally appropriate way. Adolescents want to participate and be involved in the transition process. They need support and guidance in how to communicate their CHD. Parental support is fundamental but it change over time. Moreover, peer-support is becoming more significant during the transition process.

Ort, förlag, år, upplaga, sidor
Springer, 2017. Vol. 176, nr 7, s. 881-889
Nyckelord [en]
Congenital heart disease, Transition, Adolescents, Focus group interviews
Nationell ämneskategori
Pediatrik
Identifikatorer
URN: urn:nbn:se:umu:diva-137615DOI: 10.1007/s00431-017-2917-9ISI: 000403771700006PubMedID: 28508990Scopus ID: 2-s2.0-85019185068OAI: oai:DiVA.org:umu-137615DiVA, id: diva2:1121309
Tillgänglig från: 2017-07-10 Skapad: 2017-07-10 Senast uppdaterad: 2023-03-23Bibliografiskt granskad

Open Access i DiVA

fulltext(1138 kB)300 nedladdningar
Filinformation
Filnamn FULLTEXT01.pdfFilstorlek 1138 kBChecksumma SHA-512
149c8691837832fb0018ab3621535648a98c87bf650e757927d454e1836a37da049f9fb51c6f4cc8193e2417aa6723c9b53fae5c1127fb8dada247f690f937ab
Typ fulltextMimetyp application/pdf

Övriga länkar

Förlagets fulltextPubMedScopus

Person

Rydberg, Annika

Sök vidare i DiVA

Av författaren/redaktören
Rydberg, Annika
Av organisationen
Pediatrik
I samma tidskrift
European Journal of Pediatrics
Pediatrik

Sök vidare utanför DiVA

GoogleGoogle Scholar
Totalt: 300 nedladdningar
Antalet nedladdningar är summan av nedladdningar för alla fulltexter. Det kan inkludera t.ex tidigare versioner som nu inte längre är tillgängliga.

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 915 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf