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Managing everyday life: Self-management strategies people use to live well with neurological conditions
Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad. Department of Nursing Science, Mid Sweden University, Sweden.
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2021 (Engelska)Ingår i: Patient Education and Counseling, ISSN 0738-3991, E-ISSN 1873-5134, Vol. 104, nr 2, s. 413-421Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Objective: This paper uses the Taxonomy of Everyday Self-management Strategies (TEDSS) to provideinsight and understanding into the complex and interdependent self-management strategies peoplewith neurological conditions use to manage everyday life.

Methods: As part of a national Canadian study, structured telephone interviews were conducted monthlyfor eleven months, with 117 people living with one or more neurological conditions. Answers to fiveopen-ended questions were analyzed using qualitative content analysis. A total of 7236 statements wereanalyzed.

Results: Findings are presented in two overarching patterns: 1) self-management pervades all aspects oflife, and 2) self-management is a chain of decisions and behaviours. Participants emphasizedmanagement of daily activities and social relationships as important to maintaining meaning in theirlives.

Conclusion: Managing everyday life with a neurological condition includes a wide range of diversestrategies that often interact and complement each other. Some people need to intentionally manageevery aspect of everyday life.

Practice implications: For people living with neurological conditions, there is a need for health providersand systems to go beyond standard advice for self-management. Self-management support is besttailored to each individual, their life context and the realities of their illness trajectory.

Ort, förlag, år, upplaga, sidor
Elsevier, 2021. Vol. 104, nr 2, s. 413-421
Nyckelord [en]
Neurological conditions, Patient experience, Qualitative research, Self-management, Self-care, TEDSS, Chronic conditions
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Omvårdnad
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URN: urn:nbn:se:umu:diva-174378DOI: 10.1016/j.pec.2020.07.025ISI: 000614149200028PubMedID: 32819756Scopus ID: 2-s2.0-85089520856OAI: oai:DiVA.org:umu-174378DiVA, id: diva2:1459838
Tillgänglig från: 2020-08-21 Skapad: 2020-08-21 Senast uppdaterad: 2021-07-06Bibliografiskt granskad

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Audulv, Åsa

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