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How children and adolescents with juvenile idiopathic arthritis participate in their healthcare: health professionals' views
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Paediatrics. Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Section of Physiotherapy.
Umeå University, Faculty of Medicine, Department of Community Medicine and Rehabilitation, Section of Physiotherapy.ORCID iD: 0000-0003-4781-862X
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Paediatrics. Umeå University, Faculty of Medicine, Department of Public Health and Clinical Medicine, Rheumatology.
Umeå University, Faculty of Science and Technology, Department of Computing Science.
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2022 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 44, no 10, p. 1908-1915Article in journal (Refereed) Published
Abstract [en]

Background: The study explores how healthcare professionals view participation of children and adolescents with juvenile idiopathic arthritis, in healthcare encounters.

Methods: This qualitative study includes focus groups of HCPs from different professions. The interviews were analysed with qualitative content analysis.

Results: The theme “Creating an enabling arena” illuminates how HCPs face possibilities and challenges when enabling children to communicate and participate in clinical encounters. HCPs, parents, and the healthcare system need to adjust to the child. The sub-theme “Bringing different perspectives” describes how children and their parents cooperate and complement each other during healthcare encounters. The sub-theme “Building a safe and comfortable setting” includes how HCPs address the child’s self-identified needs and make the child feel comfortable during encounters. The sub-theme “Facilitating methods in a limiting organisation” includes how HCPs’ working methods and organization may help or hinder child participation during encounters.

Conclusions: HCPs encourage children and adolescents to make their views known during healthcare encounters by creating an enabling arena. Collaboration and building good relationships between the child, the parents and the HCPs, before and during the healthcare encounters, can help the child express their wishes and experiences. Clinical examinations and use of technology, such as photos, films and web-bases questionnaires can be a good start for a better child communication in healthcare encounters.

Place, publisher, year, edition, pages
Taylor & Francis, 2022. Vol. 44, no 10, p. 1908-1915
Keywords [en]
Adolescent, child, chronic condition, communication, healthcare professionals, participation, qualitative
National Category
Pediatrics
Identifiers
URN: urn:nbn:se:umu:diva-175079DOI: 10.1080/09638288.2020.1811406ISI: 000565631500001PubMedID: 32875956Scopus ID: 2-s2.0-85090155995OAI: oai:DiVA.org:umu-175079DiVA, id: diva2:1471863
Available from: 2020-09-30 Created: 2020-09-30 Last updated: 2024-07-02Bibliographically approved

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Lundberg, VeronicaSandlund, MarleneEriksson, CatharinaJanols, RebeckaLind, TorbjörnFjellman-Wiklund, Anncristine

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Lundberg, VeronicaSandlund, MarleneEriksson, CatharinaJanols, RebeckaLind, TorbjörnFjellman-Wiklund, Anncristine
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PaediatricsSection of PhysiotherapyRheumatologyDepartment of Computing Science
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