Umeå University's logo

umu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
What matters to you?: Free-text comments in a questionnaire from patients undergoing radiotherapy
Umeå University, Faculty of Medicine, Department of Radiation Sciences, Radiation Physics.
Umeå University, Faculty of Medicine, Department of Nursing.ORCID iD: 0000-0002-1248-5581
Umeå University, Faculty of Medicine, Department of Radiation Sciences, Radiation Physics.ORCID iD: 0000-0002-8971-9788
Show others and affiliations
2020 (English)In: Technical Innovations & Patient Support in Radiation Oncology, ISSN 2405-6324, Vol. 13, p. 11-16Article in journal (Refereed) Published
Abstract [en]

Background: Most cancer patients undergo external radiotherapy (RT) at some stage during their treatment trajectory and RT is often associated with unfamiliar procedures in a highly technical environment. The purpose of this study was to explore how patients experience RT and the related processes, as described in free-text comments in a large Swedish survey with questionnaires including items on psychosocial climate and treatment environment.

Methods: The data consisted of free-text comments from one open-ended question: "Is there anything else you want us to know" and were analysed using qualitative content analysis.

Results: Of 825 returned questionnaires, 261 contained free-text comments from patients (32%). The hand-written, free-text comments reflected the patients' experience of the RT process and were abstracted into the four major categories with sub-categories: experiencing the high-tech RT environment, understanding the RT procedures and side effects, dealing with daily life during RT, and the nurses' role and performance. The categories reflect the patients' experiences and emphasize how important it is to evaluate what really matters to the patients when changing procedures, practices, and how to minimize disturbances in the patients' daily lives.

Conclusion: The main conclusions from this study are that the involvement of patients in choosing daily appointment times, providing good information during the RT process to make the patients feel safe, experience and attitude of the staff and respect for the patient's autonomy are highly ranked values for patients. An implementation of person-centred care may help relieve many of these problems.

Place, publisher, year, edition, pages
Elsevier, 2020. Vol. 13, p. 11-16
Keywords [en]
Patient experience, Qualitative research, Questionnaire, Radiotherapy
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-182323DOI: 10.1016/j.tipsro.2019.11.009PubMedID: 32128457Scopus ID: 2-s2.0-85105118397OAI: oai:DiVA.org:umu-182323DiVA, id: diva2:1545306
Funder
VinnovaAvailable from: 2021-04-19 Created: 2021-04-19 Last updated: 2024-07-02Bibliographically approved

Open Access in DiVA

fulltext(316 kB)217 downloads
File information
File name FULLTEXT01.pdfFile size 316 kBChecksum SHA-512
2f118bd3b142ac92f6157b773a0f9c5c3fe4063a95eb15780e334302fc9a214d44aebaca5c0d9898ee5ba592540d5c44a06bedc7703fd0eba784b4a90e8577b2
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMedScopus

Authority records

Olausson, KristinaFransson, PerNyholm, TufveZackrisson, Björn

Search in DiVA

By author/editor
Olausson, KristinaFransson, PerNyholm, TufveZackrisson, Björn
By organisation
Radiation PhysicsDepartment of Nursing
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 218 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 308 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf