Umeå universitets logga

umu.sePublikationer
Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
What matters in care continuity on the chronic care trajectory for patients and family carers?: A conceptual model
Department of Health and Caring Sciences, Linnaeus University Kalmar, Kalmar, Sweden.
Department of Health and Caring Sciences, Linnaeus University Kalmar, Kalmar, Sweden; Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden.
Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad. Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden.ORCID-id: 0000-0003-3220-9557
Department of Health and Caring Sciences, Linnaeus University Kalmar, Kalmar, Sweden; Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden.
2022 (Engelska)Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 31, nr 9-10, s. 1327-1338Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Aims and Objectives: To describe essential aspects of care continuity from the perspectives of persons with complex care needs and their family carers.

Background: Continuity of care is an important aspect of quality, safety and efficiency. For people with multiple chronic diseases and complex care needs, care must be experienced as connected and coherent, and consistent with medical and individual needs. The more complex the need for care, the greater the need for continuity across different competencies, services and roles.

Design: A constructivist grounded theory approach was applied.

Methods: Sixteen patients with one or more chronic diseases needing both health care and social care, living in their private homes, and twelve family carers, were recruited. Semi-structured interviews were conducted and analysed with constructivist grounded theory. The COREQ checklist was followed.

Results: A conceptual model of care continuity was constructed, consisting of five categories that were interconnected through the core category: time and space. Patients' and family carers' experiences of care continuity were closely related to timely personalised care delivery, where access to tailored information, regardless of who was performing a care task, was essential for mutual understanding. This required clarity in responsibilities and roles, interprofessional collaboration and achieving a trusting relationship between each link in the chain of care, over time and space. To achieve care continuity, all the identified categories were important, as they worked in synergy, not in isolation.

Conclusion: Care continuity for people with complex care needs and family carers is experienced as multidimensional, with several essential aspects that work in synergy, but varies over time and depends on each person's own resources and situational and contextual circumstances.

Relevance to clinical practice: The findings promote understanding of patients' and family carers' experiences of care continuity and may guide the delivery of care to people with complex care needs.

Ort, förlag, år, upplaga, sidor
John Wiley & Sons, 2022. Vol. 31, nr 9-10, s. 1327-1338
Nyckelord [en]
complex care needs, constructivist grounded theory, continuity of care, family carer
Nationell ämneskategori
Omvårdnad
Identifikatorer
URN: urn:nbn:se:umu:diva-186600DOI: 10.1111/jocn.15989ISI: 000681361900001PubMedID: 34351651Scopus ID: 2-s2.0-85111861482OAI: oai:DiVA.org:umu-186600DiVA, id: diva2:1584778
Forskningsfinansiär
Forte, Forskningsrådet för hälsa, arbetsliv och välfärd, 2017-00202Tillgänglig från: 2021-08-13 Skapad: 2021-08-13 Senast uppdaterad: 2022-08-04Bibliografiskt granskad

Open Access i DiVA

fulltext(922 kB)546 nedladdningar
Filinformation
Filnamn FULLTEXT02.pdfFilstorlek 922 kBChecksumma SHA-512
a6ced6730507c11ce3fc471b8a5a7923fd6706ef5d874b91dfc1701496b086ef5ea5c422c3aed64328c224ef32e6ac50ed75902e42d22208c2403dba47b1b43e
Typ fulltextMimetyp application/pdf

Övriga länkar

Förlagets fulltextPubMedScopus

Person

Edin-Liljegren, Anette

Sök vidare i DiVA

Av författaren/redaktören
Edin-Liljegren, Anette
Av organisationen
Institutionen för omvårdnad
I samma tidskrift
Journal of Clinical Nursing
Omvårdnad

Sök vidare utanför DiVA

GoogleGoogle Scholar
Totalt: 587 nedladdningar
Antalet nedladdningar är summan av nedladdningar för alla fulltexter. Det kan inkludera t.ex tidigare versioner som nu inte längre är tillgängliga.

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 275 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf