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Legitimizing user knowledge in mental health services: epistemic (in)justice and barriers to knowledge integration
Department of Social and Psychological Studies, Karlstad University, Karlstad, Sweden.
Umeå University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-8755-3710
NSPH National Association, Stockholm, Sweden.
NSPH Skåne, Malmö, Sweden.
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2022 (English)In: Frontiers in Psychiatry, E-ISSN 1664-0640, Vol. 13, article id 981238Article in journal (Refereed) Published
Abstract [en]

Including the voices and knowledge of service users is essential for developing recovery-oriented and evidence-based mental health services. Recent studies have however, suggested that challenges remain to the legitimization of user knowledge in practice. To further explore such challenges, a co-production study was conducted by a team of researchers and representatives from user organizations in Sweden. The aim of the study was to explore the barriers and facilitators to the legitimacy of user knowledge, as a central factor in sustainably implementing user influence in mental health practice. A series of workshops, with representatives of mental health services and user organizations were conducted by the research team to explore these issues. The analysis built on the theoretical framework of epistemic injustice, and the underlying aspects, testimonial, hermeneutic and participation-based injustice, were utilized as a framework for a deductive analysis. Results suggest that this is a useful model for exploring the complex dynamics related to the legitimacy of user knowledge in mental health systems. The analysis suggests that the legitimacy of user knowledge is related to the representativeness of the knowledge base, the systematic formulation of this knowledge in applicable methods, access to resources and positions within the mental health system and participation in the process of integrating this knowledge-base in mental health contexts. Legitimizing user knowledge in practice additionally challenges mental health systems to support readiness for change in working environments and to address the power and role issues that these changes involve.

Place, publisher, year, edition, pages
Frontiers Media S.A., 2022. Vol. 13, article id 981238
Keywords [en]
mental health services, user involvement, co-production in research, epistemic injustice, user organizations, implementation, recovery
National Category
Other Social Sciences Sociology Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:umu:diva-198973DOI: 10.3389/fpsyt.2022.981238ISI: 000852169600001PubMedID: 36090358Scopus ID: 2-s2.0-85138003423OAI: oai:DiVA.org:umu-198973DiVA, id: diva2:1691306
Projects
Challenges and opportunities for establishing user influence – Legitimizing experiential knowledge as a resource in social psychiatry
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-01297Available from: 2022-08-29 Created: 2022-08-29 Last updated: 2024-01-17Bibliographically approved

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Näslund, HildaRosenberg, David

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