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The longitudinal association between patient empowerment and patient-reported outcomes: what is the direction of effect?
Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden; Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden.
Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden.
Division of Pediatrics, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden; Crown Princess Victoria Children's Hospital, Linköping University Hospital, Linköping, Sweden.
Department of Children and Young Adults, University Hospital Örebro, Sweden.
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2022 (Engelska)Ingår i: PLOS ONE, E-ISSN 1932-6203, Vol. 17, nr 11, artikel-id e0277267Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

BACKGROUND: Theoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice versa. AIMS: The present study aimed to examine the direction of effects between patient empowerment and PROs in young persons with congenital heart disease (CHD). METHODS: As part of the STEPSTONES-CHD trial, adolescents with CHD from seven pediatric cardiology centers in Sweden were included in a longitudinal observational study (n = 132). Data were collected when patients were 16 (T0), 17 (T1) and 18 ½ years old (T2). The Gothenburg Young Persons Empowerment Scale (GYPES) was used to measure patient empowerment. Random intercepts cross-lagged panel models between patient empowerment and PROs (communication skills; patient-reported health; quality of life; and transition readiness) were undertaken. RESULTS: We found a significant cross-lagged effect of transition readiness over patient empowerment between T1 and T2, signifying that a higher level of transition readiness predicted a higher level of patient empowerment. No other significant cross-lagged relationships were found. CONCLUSION: Feeling confident before the transition to adult care is necessary before young persons with CHD can feel in control to manage their health and their lives. Clinicians interested in improving patient empowerment during the transitional period should consider targeting transition readiness.

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Public Library of Science , 2022. Vol. 17, nr 11, artikel-id e0277267
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Pediatrik Omvårdnad
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URN: urn:nbn:se:umu:diva-201231DOI: 10.1371/journal.pone.0277267ISI: 000926098800058PubMedID: 36355855Scopus ID: 2-s2.0-85141891947OAI: oai:DiVA.org:umu-201231DiVA, id: diva2:1715249
Forskningsfinansiär
Forte, Forskningsrådet för hälsa, arbetsliv och välfärd, STYA-2015/0003Hjärt-Lungfonden, 20150535Vetenskapsrådet, 2015-02503Tillgänglig från: 2022-12-01 Skapad: 2022-12-01 Senast uppdaterad: 2023-09-05Bibliografiskt granskad

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