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Parents’ experiences of transitioning to home with a very-low-birthweight infant: a meta-ethnography
Lovisenberg Diaconal University College, Oslo, Norway.
Health, Aarhus University, Aarhus, Denmark; Faculty of Health Sciences and Nursing University of Faroe Islands, Torshavn, Faroe Islands.
Umeå universitet, Medicinska fakulteten, Institutionen för omvårdnad.
Department of Clinical Medicine - Randers Regional Hospital, Aarhus University, Aarhus, Denmark; Faculty of Nursing and Health Sciences, Nord University, Bodø, Norway.
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2023 (Engelska)Ingår i: Journal of Neonatal Nursing, ISSN 1355-1841, E-ISSN 1878-089X, Vol. 29, nr 3, s. 444-452Artikel, forskningsöversikt (Refereegranskat) Published
Abstract [en]

Medical-technological advances and neurodevelopmental care have improved the survival of extremely- and very-low-birthweight infants born before 32 weeks' gestation. After months in neonatal care, the infants are discharged, and parents exited but full of anxiety. This review is designed as a meta-ethnography, addressing parents' discharge experiences to comprehend the synthesised research, which includes 12 eligible studies. From the analysis, we constructed three themes: ‘approaching discharge with both uncertainty and confidence’; ‘discharge as a longed-for though disordering turning point’; and ‘facing joys, worries and multiple challenges when at home’. The overarching interpretation was ‘discharge as double-edged sword’. We conclude that bringing home very-low-birthweight infants is a joyful event, yet parents also experience discharge as never-endingly worrying, as a time filled with challenges to which parents must adapt and as necessitating continuous support from knowledgeable providers.

Ort, förlag, år, upplaga, sidor
Elsevier, 2023. Vol. 29, nr 3, s. 444-452
Nyckelord [en]
Discharge-to-home, Extremely-low-birthweight, Meta-ethnography, Neonatal care, parents, Transition, Very-low-birthweight
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URN: urn:nbn:se:umu:diva-203115DOI: 10.1016/j.jnn.2022.11.012Scopus ID: 2-s2.0-85145226805OAI: oai:DiVA.org:umu-203115DiVA, id: diva2:1727498
Tillgänglig från: 2023-01-16 Skapad: 2023-01-16 Senast uppdaterad: 2023-07-13Bibliografiskt granskad

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