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Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention
Children's Participation in Environment Research Lab, College of Applied Health Sciences, University of Illinois Chicago, Chicago, IL, United States; Program in Rehabilitation Sciences, College of Applied Health Sciences, University of Illinois Chicago, Chicago, Illinois, United States.ORCID iD: 0000-0003-1290-9441
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2023 (English)In: Applied Clinical Informatics, ISSN 1869-0327, Vol. 14, no 1, p. 91-107Article in journal (Refereed) Published
Abstract [en]

Objective: The aim of the study is to identify and prioritize early intervention (EI) stakeholders' perspectives of supports and barriers to implementing the Young Children's Participation and Environment Measure (YC-PEM), an electronic patient-reported outcome (e-PRO) tool, for scaling its implementation across multiple local and state EI programs.

Methods: An explanatory sequential (quan > QUAL) mixed-methods study was conducted with EI families (n = 6), service coordinators (n = 9), and program leadership (n = 7). Semi-structured interviews and focus groups were used to share select quantitative pragmatic trial results (e.g., percentages for perceived helpfulness of implementation strategies) and elicit stakeholder perspectives to contextualize these results. Three study staff deductively coded transcripts to constructs in the Consolidated Framework for Implementation Research (CFIR). Data within CFIR constructs were inductively analyzed to generate themes that were rated by national early childhood advisors for their relevance to longer term implementation.

Results: All three stakeholder groups (i.e., families, service coordinators, program leadership) identified thematic supports and barriers across multiple constructs within each of four CFIR domains: (1) Six themes for intervention characteristics, (2) Six themes for process, (3) three themes for inner setting, and (4) four themes for outer setting. For example, all stakeholder groups described the value of the YC-PEM e-PRO in forging connections and eliciting meaningful information about family priorities for efficient service plan development (intervention characteristics). Stakeholders prioritized reaching families with diverse linguistic preferences and user navigation needs, further tailoring its interface with automated data capture and exchange processes (process); and fostering a positive implementation climate (inner setting). Service coordinators and program leadership further articulated the value of YC-PEM e-PRO results for improving EI access (outer setting).

Conclusion: Results demonstrate the YC-PEM e-PRO is an evidence-based intervention that is viable for implementation. Optimizations to its interface are needed before undertaking hybrid type-2 and 3 multisite trials to test these implementation strategies across state and local EI programs with electronic data capture capabilities and diverse levels of organizational readiness and resources for implementation.

Place, publisher, year, edition, pages
Georg Thieme Verlag KG, 2023. Vol. 14, no 1, p. 91-107
Keywords [en]
assessment, children, early intervention, facilitators and barriers, family engagement, goal setting, implementation strategies, patient-reported outcomes, Child, Child, Preschool, Electronics, Focus Groups, Humans, Patient Reported Outcome Measures, Qualitative Research, human, information processing, patient-reported outcome, preschool child
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Pediatrics Occupational Therapy Other Health Sciences
Identifiers
URN: urn:nbn:se:umu:diva-212678DOI: 10.1055/s-0042-1760631ISI: 000924719800002PubMedID: 36724883Scopus ID: 2-s2.0-85147235006OAI: oai:DiVA.org:umu-212678DiVA, id: diva2:1786194
Available from: 2023-08-08 Created: 2023-08-08 Last updated: 2023-08-10Bibliographically approved

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Kaelin, Vera C.

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