Purpose: The purpose of this study was to illuminate experiences of obtainingsupport among male adolescents with congenital heart disease and their mothers,and nurses’ experiences of providing support within pediatric nursing care.
Methods: This descriptive qualitative study used an inductive approach. Datawere collected from interviews with six participants: two adolescents with congenital heart defects-mother dyads, and two nurses at a pediatric cardiac outpatient clinic in Sweden. Data were analyzed through content analysis.
Results: Results are divided into three domains: desired support, lacking support,and undesirable support. Within these three respective domains, support is furtherillustrated from three categories of perspectives: adolescents, mothers, and nurses.
Conclusions: Study findings show adolescents and their mothers desire support,such as family-system nursing. Nurses strive to provide support in the form ofinformative care like the approach based on the philosophy of pediatric familycentered care.
Implications: When highlighting experiences of support from different perspectives, it is important for the provided support to be adapted to families’ needs.