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I want to be known as a whole human being: a qualitative study about patients’ experiences of empathy in health care
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Professional Development.ORCID iD: 0000-0001-9508-868X
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Professional Development.
Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health.ORCID iD: 0000-0003-4942-611x
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Professional Development.ORCID iD: 0000-0003-2876-8567
(English)Manuscript (preprint) (Other academic)
Abstract [en]

Empathy is crucial in forming a good relationship between patients and healthcare providers. Research on empathy in health care has largely focused on healthcare providers and students and less on the patient’s perspective. This study´s aim was to investigate patients’ experience of empathy in healthcare interactions, to better understand and accommodate to patients’ needs.

Semi-structured interviews with patients were analyzed using constructivist Grounded Theory according to Charmaz. Three categories were formed - "I need you to focus on me", "I am more than my disease" and "I know myself and the disease" and the core category: "I want to be known as a whole human being".

This study has provided a deeper insight on how empathy can be operationalized in healthcare interactions from a patient perspective. Patients experience health care interactions as dependent on empathic engagement and hampered by inequity due to knowledge hierarchies and lack of personal sharing. This study emphasizes patients´ need for doctors to be more personal, and to experience a mutual sharing with their doctors to not feel vulnerable or left out in the consultation.

Keywords [en]
Medical education, medical students, physicians, empathy, patient-doctor relationship, professional development, qualitative methods
Keywords [sv]
Läkarutbildning, läkarstudenter, läkare, empati, patient-läkarrelation, professionell utveckling, kvalitativ metod
National Category
Other Health Sciences
Identifiers
URN: urn:nbn:se:umu:diva-238530OAI: oai:DiVA.org:umu-238530DiVA, id: diva2:1957066
Available from: 2025-05-08 Created: 2025-05-08 Last updated: 2025-05-12Bibliographically approved
In thesis
1. Jag tror jag är det; vi behöver det – men det är svårt: patienters och läkares erfarenheter av empati i vårdens vardag
Open this publication in new window or tab >>Jag tror jag är det; vi behöver det – men det är svårt: patienters och läkares erfarenheter av empati i vårdens vardag
2025 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[en]
I believe I am; we need it – but it is difficult : patients and doctors experiences of empathy in the everyday life of healthcare
Abstract [en]

Background: Empathy — the ability to recognize others’ emotions, understand their feelings and situations, and respond in a helpful way — is a fundamental component of the patient–doctor relationship. It is associated with several positive outcomes in patient care. However, numerous quantitative studies suggest that empathy tends to decline during medical education and as doctors progress through clinical training. This thesis adopts a qualitative approach to explore the prerequisites for, and potential challenges to, empathy in healthcare, through the perspectives and lived experiences of medical students, doctors, and patients.

Method: This thesis is based on empirical material from four different interview studies, all of which employed a qualitative analysis, inspired by qualitative content analysis and constructivist grounded theory.

Findings and reflections: Junior doctors describe empathy as contextual and influenced by, for example time constraints and workplace culture. Additionally, senior colleagues were seen as particularly important role models in developing and maintaining empathic abilities. Senior doctors reported a daily balancing act, navigating challenges between individual and structural conditions that may affect empathy. Medical students experienced clashes between theoretical teachings and clinical reality regarding empathy, and they made efforts to develop and sustain empathy during their education. Patients expressed a longing for a more personal connection with healthcare personnel. They described inequities in the patient-doctor relationship, which could be partly bridged through empathy.

Conclusions: Both doctors and patients consider empathy crucial in the patient – doctor relationship. However, there are challenges related to empathy both in individual interactions and at a structural level in clinical and educational contexts. To maintain and further develop empathy, doctors need working conditions that allow for collegial reflection and conversations that promote empathy. This approach would also benefit medical students, who are influenced by teachers and clinical doctors as role models for empathy.

Place, publisher, year, edition, pages
Umeå: Umeå University, 2025. p. 90
Series
Umeå University medical dissertations, ISSN 0346-6612 ; 2360
Keywords
Medical education, medical students, physicians, empathy, patient-doctor relationship, professional development, qualitative methods, Läkarutbildning, läkarstudenter, läkare, empati, patient-läkarrelation, professionell utveckling, kvalitativ metod
National Category
Other Health Sciences
Research subject
professional development
Identifiers
urn:nbn:se:umu:diva-238545 (URN)978-91-8070-711-4 (ISBN)978-91-8070-710-7 (ISBN)
Public defence
2025-06-05, Hörsal Betula, by 6M, målpunkt L0, Norrlands universitetssjukhus, Umeå, 09:00
Opponent
Supervisors
Available from: 2025-05-15 Created: 2025-05-12 Last updated: 2025-05-12Bibliographically approved

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von Knorring, JohannaLehti, ArjaLindvall, KristinaSemb, Olof

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