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A complex intervention to strengthen person-centered care and leadership in residential care facilities (the PERLE study): protocol for a development and implementation study
Faculty of Health Sciences, Kristianstad University, Kristianstad, Sweden.
Umeå University, Faculty of Medicine, Department of Nursing.ORCID iD: 0000-0002-3408-2900
2025 (English)In: JMIR Research Protocols, E-ISSN 1929-0748, Vol. 14, article id e76185Article in journal (Refereed) Published
Abstract [en]

Background: Although the benefits of person-centered care (PCC) are widely recognized, there is a lack of empirical research on how PCC is best developed and implemented by the leaders responsible for driving such initiatives. To achieve meaningful change and ensure the sustainability of PCC practices, it is crucial to understand how leaders can foster care environments rooted in person-centered values while managing operational challenges. This knowledge gap highlights the need for an in-depth exploration of the conceptual foundations, experiences, mechanisms, strategies, and outcomes of person-centered leadership (PCL) to design an intervention for strengthening such leadership.

Objective: The Person-Centered Care and Leadership in Residential Care Facilities (PERLE) study aims to (1) explore and develop tools to measure PCL; (2) develop, test, implement, and investigate the effects of an intervention to strengthen PCL in residential care facilities (RCFs) for older people; and (3) generate knowledge about the process of development and implementation of the intervention.

Methods: The PERLE study builds on the Medical Research Council framework for the development of complex interventions. It includes several studies with exploratory, descriptive, correlational, and quasi-experimental designs and is based on the research group’s previous research on PCL. The project is composed of 5 work packages (WPs). Each WP includes research questions with different samples; data collection; and methodological approaches, such as qualitative, mixed methods, and quantitative studies. As this project involves sensitive issues, a high level of ethical awareness was maintained throughout. The primary challenge is the possible interference with participants’ work time, which could otherwise be devoted to supporting older people and staff. Nevertheless, the involvement of leaders and staff can lead to valuable knowledge that can improve the quality of PCC. Participants will be provided with both oral and written information about the study and assured of their right to withdraw at any time without providing a reason.

Results: As of July 2025, 6 studies in WP I have been conducted, and one is in progress. The conducted studies address leaders’ understanding of PCC, the meaning of PCL in RCFs from the perspective of leaders, the ethical challenges in providing PCC during the COVID-19 pandemic, and the cultural adaptation of the aged care clinical leadership qualities framework.

Conclusions: This project aims to provide new insights into the support that first-line managers need to advance PCC in RCFs, highlight their specific challenges, and create tailored support measures for the implementation of PCL. The intervention could potentially reduce staff turnover and related costs while supporting leadership training and education to benefit future leaders in aged care, which may be important from an international perspective.

Place, publisher, year, edition, pages
JMIR Publications, 2025. Vol. 14, article id e76185
Keywords [en]
leadership, long-term–care facilities, nursing homes, older people, person-centered care, quasi-experimental intervention, residential care facilities
National Category
Nursing
Identifiers
URN: urn:nbn:se:umu:diva-242538DOI: 10.2196/76185Scopus ID: 2-s2.0-105011651334OAI: oai:DiVA.org:umu-242538DiVA, id: diva2:1986887
Funder
The Dementia Association - The National Association for the Rights of the DementedGyllenstiernska Krapperup FoundationKristianstad UniversityAvailable from: 2025-08-04 Created: 2025-08-04 Last updated: 2025-08-04Bibliographically approved

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Backman, Annica C.

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