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Development and validation of the UserInvolve comprehensive toolkit for evaluating co-production in research: a guiding resource for researchers
Umeå University, Faculty of Social Sciences, Department of Social Work. The Swedish Partnership for Mental Health, NSPH, Stockholm, Sweden.ORCID iD: 0009-0006-2626-6829
Umeå University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-6330-5640
Umeå University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-8755-3710
School of Health and Welfare, Halmstad University, Halmstad, Sweden.
2025 (English)In: Research Involvement and Engagement, E-ISSN 2056-7529, Vol. 11, no 1, article id 93Article in journal (Refereed) Published
Abstract [en]

Background: Despite the evident trend in health research to emphasise co-production approaches, there is a lack of established, comprehensive and concrete strategies and evaluation methods to effectively guide and assess them. This project aimed to develop, validate, and test a toolkit designed to enhance and evaluate co-productions in mental health research. The toolkit includes practical evaluation tools, such as a structured questionnaire and tailored interview guides, to support the initiation of research projects and assess the involvement, process and impact of co-production efforts.

Methods: This project used a co-production approach with formative research design to develop a comprehensive toolkit for evaluating the process and impact of co-production in mental health research. Conducted between 2022 and 2024, the project involved iterative engagement with diverse stakeholder groups, providing a dynamic testbed for developing, validating, and field-testing the instruments. The paper outlines the four-phase process: (1) toolkit generation, (2) validation, (3) field-testing, and (4) completion, detailing how the co-production approach shaped the toolkit’s design, relevance, usability, and rigor.

Results: The result of this project is a structured, practical, and comprehensive co-production evaluation toolkit designed specifically for mental health research, potentially involving a wide range of partnerships. The toolkit includes a project initiation guide, a process-oriented survey and interview-guide for mid- and post-project evaluations, and an impact-focused post-project group interview guide.

Conclusions: The findings address a critical gap in mental health research by developing a structured, practical, and comprehensive co-production evaluation toolkit. The toolkit offers comprehensive strategies for evaluating involvement and both the processes and impacts of co-production throughout a project's lifecycle.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2025. Vol. 11, no 1, article id 93
Keywords [en]
Co-production, Evaluation toolkit, Instrument, Involvement, Mental health, Research, Service users
National Category
Epidemiology Public Health, Global Health and Social Medicine Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:umu:diva-243424DOI: 10.1186/s40900-025-00759-3PubMedID: 40770385Scopus ID: 2-s2.0-105012739569OAI: oai:DiVA.org:umu-243424DiVA, id: diva2:1990938
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2021–01427Available from: 2025-08-21 Created: 2025-08-21 Last updated: 2025-08-21Bibliographically approved

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Gustafsson, AnneliMarkström, UrbanNäslund, Hilda

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