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Scoping review of needs for digital technology in co-creation: a health CASCADE study
School of Health and Life Science, Glasgow Caledonian University, Govan Mbeki Building, Room A258, Cowcaddens Road, United Kingdom.
Umeå universitet, Medicinska fakulteten, Institutionen för samhällsmedicin och rehabilitering.ORCID-id: 0000-0002-0693-570x
Health Psychology and Behavioural Medicine, Constructor University, Bremen, Germany.
Institute of Informatics and Telecommunications, NCSR “Demokritos”, Athens, Greece; Department of Digital Systems, University of Piraeus, Athens, Greece.
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2025 (Engelska)Ingår i: Research Involvement and Engagement, E-ISSN 2056-7529, Vol. 11, nr 1, artikel-id 121Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background: Patient and public involvement (PPI) is increasingly recognised as essential for meaningful, equitable, and impactful health and social care research. Co-creation is a promising involvement approach, but it faces barriers to enable its optimal potential. Digital technologies have the potential to overcome these challenges and strengthen the participatory process, but the specific technology needs that underpin effective participation and engagement remain underexplored.

Methods: We conducted a comprehensive scoping review of 60 peer-reviewed studies to systematically map the digital technology needs supporting co-creation processes. Needs were extracted and thematically analysed, resulting in a structured synthesis.

Results: A total of 337 distinct digital technology needs were identified and organised into five thematic areas: Ensuring Integrity, Enabling Methodology, Cognitive Needs, Group Dynamics, and Process Management. While most needs focused on functional attributes, non-functional characteristics, such as usability, scalability, and inclusivity, emerged as critical for meaningful patient and public engagement. The review highlights the fragmented articulation of technology needs across disciplines and settings. It proposes a structured framework to make latent needs visible, align stakeholder perspectives, and guide the development of digital tools. The emerging role of artificial intelligence in supporting hybrid models of involvement, along with the associated ethical challenges, is also discussed.

Conclusion: This review provides the first thematic framework for understanding and addressing digital technology needs in co-creation. The findings offer a foundation for researchers, practitioners, and policy-makers within health and social care to develop and implement digital tools that enhance accessibility, engagement, and impact of participatory processes. Future research should validate and refine these insights in partnership with patients, service users, and diverse communities to ensure technological solutions foster truly inclusive and effective involvement.

Ort, förlag, år, upplaga, sidor
BioMed Central (BMC), 2025. Vol. 11, nr 1, artikel-id 121
Nyckelord [en]
Artificial intelligence, Co-creation, Collective intelligence, Digital technology, Participatory needs, Participatory research, Patient and public involvement (PPI)
Nationell ämneskategori
Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning
Identifikatorer
URN: urn:nbn:se:umu:diva-246003DOI: 10.1186/s40900-025-00797-xScopus ID: 2-s2.0-105019491070OAI: oai:DiVA.org:umu-246003DiVA, id: diva2:2010813
Forskningsfinansiär
EU, Horisont 2020, 956501Tillgänglig från: 2025-11-03 Skapad: 2025-11-03 Senast uppdaterad: 2025-11-03Bibliografiskt granskad

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