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I want to be known as a whole human being: aqualitative study about patients' experiences of empathy in health care
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Professional Development.ORCID iD: 0000-0001-9508-868X
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Professional Development.
Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health.ORCID iD: 0000-0003-4942-611x
Umeå University, Faculty of Medicine, Department of Clinical Sciences, Professional Development.ORCID iD: 0000-0003-2876-8567
2025 (English)In: Journal of Patient Experience, ISSN 2374-3735, E-ISSN 2374-3743, Vol. 12, article id 23743735251369702Article in journal (Refereed) Published
Abstract [en]

Empathy is crucial in forming a good relationship between patients and healthcare providers. Research on empathy in health care has largely focused on healthcare providers and students and less on the patient's perspective. This study's aim was to investigate patients' experience of empathy in healthcare interactions, to better understand and accommodate to patients' needs. Semi-structured interviews with patients were analyzed inspired by constructivist Grounded Theory. Three categories were formed-"I need you to focus on me," "I am more than my disease" and "I know myself and the disease" and the core category: "I want to be known as a whole human being." This study has provided a deeper insight on how empathy can be operationalized in healthcare interactions from a patient perspective. Patients experience health care interactions as dependent on empathic engagement and hampered by inequity due to knowledge hierarchies and lack of personal sharing. This study emphasizes patient & sacute; need for doctors to be more personal, and to experience a mutual sharing with their doctors to not feel vulnerable or left out in the consultation.

Place, publisher, year, edition, pages
Sage Publications, 2025. Vol. 12, article id 23743735251369702
Keywords [en]
empathy, professionalism, physician-patient relationship, communication, medical education, grounded theory
National Category
Public Health, Global Health and Social Medicine Other Health Sciences
Identifiers
URN: urn:nbn:se:umu:diva-247372DOI: 10.1177/23743735251369702ISI: 001556250300001PubMedID: 40861844Scopus ID: 2-s2.0-105024699311OAI: oai:DiVA.org:umu-247372DiVA, id: diva2:2019751
Funder
Umeå UniversityAvailable from: 2025-12-08 Created: 2025-12-08 Last updated: 2026-02-18Bibliographically approved

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von Knorring, JohannaLehti, ArjaLindvall, KristinaSemb, Olof

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