Umeå universitets logga

I dag lever 80 procent av patienterna med cancer i barn- och ungdomsåren fem år efter diagnos.

Ungefär 6 000–7 000 individer i Sverige är före detta barncancerpatienter.

Sena komplikationer till sjukdom och behandling ses hos 60–70 procent av överlevarna.

Extra utsatta är de med hjärntumör, de som strålbehandlats och vissa grupper som stamcellstransplanterats.

Inte alla som behandlats för cancer i barn- och ungdomsåren drabbas av sena komplikationer.

En kohortstudie bestående av alla i Norden som under 20 års ålder insjuknade i cancer (n ≈55 000) åren 1943–2008 har påbörjats 2010.

Riktlinjer för uppföljning efter barncancer baserat på given behandling har tagits fram av Svenska arbetsgruppen för långtidsuppföljning efter barncancer (SALUB).

The 5-year survival for children and adolescents with cancer in developed countries is now 80 % and as a result of this, the number of adults who were treated for cancer in childhood is steadily increasing. Studies have shown that 60-70 % of survivors have at least one late complication after their disease and/or its treatment, with as yet no plateau in increased incidence. Most affected are survivors of brain tumours, those who received radiation therapy and some groups of survivors after stem cell transplantation. Problems include increased late mortality, second malignant neoplasms, endocrinological matters including infertility, cardiac and pulmonary issues and neurocognitive problems. A Nordic cohort study (Nordic Childhood Cancer Study, NCCS) is starting 2010 with the largest number of survivors yet followed. Recommendations for follow-up have been produced in North America and the United Kingdom and for Sweden by the working group for long-term follow-up after childhood cancer (SALUB).