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  • 1.
    Cocq, Coppélie
    et al.
    University of Helsinki, Helsinki, Finland.
    Ljuslinder, Karin
    Umeå University, Faculty of Arts, Department of culture and media studies.
    Self-representations on social media: Reproducing and challenging discourses on disability2020In: Alter;European Journal of Disability Research ;Journal Europeen de Recherche Sur le Handicap, ISSN 1875-0672, E-ISSN 1875-0680, Vol. 14, no 2, p. 71-84Article in journal (Refereed)
    Abstract [en]

    This article examines self-representations in a social media campaign against the discrimination of people with disabilities. We focus specifically on how these representations are related to various narratives and discourses, and in what ways the representations either adhere to or challenge normative discourses, or whether they offer counter-discourses. Considering that our cultural assumptions are influenced by the representations we are exposed to, we also discuss the possible potential of self-representations for the audience of the campaign. The empirical material consists of a digital activism campaign conducted on Instagram in Sweden that was constructed through self-representations (photos and short texts). The study combines discourse analysis and visual analysis with focus on how the persons present themselves in the campaign, how disability is mentioned and/or displayed, and how a presentation adheres to or challenges a model of understanding disability, such as the medical or social models. We found a diverse set of claims, all with the common goal of acknowledging discrimination, in order to make it visible and bring about change. The narratives identified indicate a variety of strategies for understanding disability and various styles that people adopt to relate to established discourses on disabilities. Through this campaign, the bloggers could find and provide support, but they also took the stage by requesting that the audience listen. The campaign examined in this study can be further understood as an effort and a step towards increased visibility and politicization of disability.

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  • 2.
    De Veirman, Sofie
    et al.
    History Department, Ghent Univeristy .
    Haage, Helena
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Deaf and unwanted?: marriage characteristics of deaf people in eighteenth and nineteenth-century Belgium: a comparative and cross-regional approach2016In: Continuity and Change, ISSN 0268-4160, E-ISSN 1469-218X, Vol. 31, no 2, p. 241-273Article in journal (Refereed)
    Abstract [en]

    In this article, the marriage characteristics of deaf men and women born in eighteenth- and nineteenth-century Belgium are compared to each other, as well as to a group of non-deaf siblings and a group of Swedish deaf persons. The aim is to determine the extent to which the marriage pattern of deaf persons lined up with that of non-disabled persons and to see how experiences of disablement interacted with the environment in which persons dwelt. This article challenges the belief in a universal disability experience by arguing that although deaf individuals generally encountered more difficulties in finding a marriage partner, marriage chances were significantly dependent on personal characteristics such as gender, living environment and birth date. As such, we demonstrate that the relationship between being deaf and being vulnerable on the marriage market was not an inescapable one, but the product of specific environments.

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  • 3.
    Gelfgren, Stefan
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Ineland, Jens
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Cocq, Coppélie
    Umeå University, Faculty of Arts, Humlab. Department of Cultures, University of Helsinki, Helsinki, Finland.
    Social media and disability advocacy organizations: caught between hopes and realities2022In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 37, no 7, p. 1085-1106Article in journal (Refereed)
    Abstract [en]

    This article examines the role of advocacy organizations and their use of social media within the field of disability in Sweden. How do the organizations negotiate digital media, and what are the (intentional or unintentional) consequences related to the use of social media? With focus on the representatives of advocacy organizations, we study how they reflect and act in order to balance various motives, and what challenges and ambiguities that arise. On one hand, there is a perceived need to be online and communicate with members and the surrounding society. On the other hand, digital communication induces a divide between those who have the resources to take part in such communication, and those who do not – in terms of digital competence, economy, age, cognitive abilities, technical equipment and digital connection. The heterogeneity of resources and target groups inevitably challenges both the ideals of inclusion and intentions of advocacy organizations.

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  • 4.
    Haage, Helena
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Opportunities of Work and Family in Young Disabled People’s Lives: A Comparative Study of Disabled and Non-disabled Young Adults in Nineteenth-century Northern Sweden Using Sequence Analysis2016In: Proceedings of the International Conference on Sequence Analysis and Related Methods (LaCOSA II) / [ed] Gilbert Ritschard and Matthias Studer, Lausanne: Université de Lausanne , 2016, p. 93-102Conference paper (Other academic)
    Abstract [en]

     This study focuses on young adults with disabilities and their pathways towards work and family in past society. The aim is to explore their life trajectories and compare them to a non-disabled group of people who experienced the same time-space context, represented by the 19th-century Sundsvall region, Sweden. We employ sequence analyses on a series of demographic events that were to occur in the life of young adults: first occupation, marriage and parenthood. We also check for the events of death and out-migration. Disability studies show that disabled people were often subject to stigmatization caused by their impairment and prevailing perceptions about normalcy in in society. This would have limited their opportunities of work and family compared to non-disabled persons. Individual-level data consisting of parish registers digitized by the Demographic Data Base (DDB), Umeå University, Sweden, allow sequence analysis that helps to answer the questions of whether and how disability influenced people’s life trajectories. We obtain a holistic picture of how their life developed that suggests that disability substantially limited people’s opportunities to find job, marry and form a family. This indicates that a stigma was associated with disability beyond the impairment itself and worked to add to disabled individuals’ difficulties in both the labor market and marriage market.

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  • 5.
    Haage, Helena
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Disabled and unmarried?: Marital chances among disabled people in nineteenth-century northern Sweden2017In: Essays in Economic & Business History, ISSN 0896-226X, Vol. 35, no 1, p. 207-238Article in journal (Refereed)
    Abstract [en]

    To marry and form a household of one's own was the expected life course of most people in the nineteenth century, but little is known about whether individuals with disabilities shared the same demographic experience of marriage as non-disabled did. This study examines this issue by analyzing the marital chances of a group of disabled people—i.e. blind, deaf mute, crippled and with mental disabilities—compared with a non-disabled reference group. Our results show that about a quarter of the disabled individuals did marry, even though their marital propensities were significantly lower than those of non-disabled people. These propensities also differed by gender and type of disability. We suggest that the lower marital chances and the variation we found within the group of disabled people indicate the level of social exclusion they faced in society.

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  • 6.
    Häggström Lundevaller, Erling
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Haage, Helena
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Modelling mortality using life trajectories of disabled and non-disabled individuals in nineteenth-century Sweden2018In: Sequence analysis and related approaches: innovative methods and applications / [ed] Gilbert Ritschard, Matthias Studer, Cham, Switzerland: Springer, 2018, p. 69-81Chapter in book (Refereed)
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  • 7.
    Häggström Lundevaller, Erling
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Sandström, Glenn
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Long-term Health Outcomes from Inbreeding: Longevity, Fertility and Impairment2021Report (Other academic)
    Abstract [en]

    The aim of the paper is to investigate if inbreeding had any health effects on individuals born 1890–1905 in Skellefteå, Sweden, with a follow-up period until 1950. The effects on longevity, fertility and impairments as outcome variables is of particular interest to clarify, as they provide a comprehensive picture of howinbreeding affects human demographic behaviour and health during this period. The effect on longevity was not strong but caused higher mortality for men above one year of age. The risk of stillbirths showed a substantial association with inbreeding, with a higher risk for highly inbred. The probability of having children was lower for persons representing high levels of inbreeding. However, the number of children given that at leastone child is born is not affected. No significant effect of the parents being related is noted on fertility. With respect to an individual’s own inbreeding we find that the higher the level of inbreeding, the higher the risk of impairments.

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  • 8.
    Ineland, Jens
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Legitimacy and ambiguity: institutional logics and their outcome for people with intellectual disabilities2020In: Research and Practice in Intellectual and Developmental Disabilities, ISSN 2329-7018, Vol. 7, no 1, p. 54-63Article in journal (Refereed)
    Abstract [en]

    Organisations providing services for people with intellectual disabilities operate within a context of legal, moral, and institutional frameworks. This article uses an institutional framework to analyse two types of welfare organisations for people with intellectual disabilities in Sweden: inclusive education and disability arts. These two empirical cases show that because disability organisations operate at the intersection of different institutional spheres, their aims and activities are subjected to differing, and at times conflicting, expectations. Using an institutional framework helps to identify the influence of conflicting logics and external roles on the daily encounters that professionals have with people with intellectual disabilities. The findings raise ethical considerations about the moral status of people with intellectual disabilities in contemporary society.

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  • 9.
    Ineland, Jens
    et al.
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Gelfgren, Stefan
    Umeå University, Faculty of Arts, Humlab.
    Cocq, Coppélie
    Umeå University, Faculty of Arts, Humlab. University of Helsinki, Department of Cultures.
    Negotiating Authority: Disability, Interactions and Power Relations on Twitter2019In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 21, no 1, p. 238-249Article in journal (Refereed)
    Abstract [en]

    Social media is often seen as an arena for negotiation of power, where marginalized voices can be given influence in the public debate. This study focuses the use of Twitter for discussions related to disabilities and disability policy in Sweden. The empirical material is gathered through the hashtag (#) “funkpol”, the primary hashtag used to discuss such topics. Empirical data was gathered using a scripted Google spreadsheet. Over a period of 6 months, approximately 10.000 tweets were retrieved. Our findings show nine different categories of twitterers. According to patterns visible in the study, the most active twitterers – the private twitterers – reached out to the established power (advocacy organizations, politicians and media). However, these instances did not respond as much as they were addressed – at least not directly on Twitter. The article shows how private actors are active but not picked up in the public debate. Instead, established power structures prevailed.

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  • 10.
    Ineland, Jens
    et al.
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Karhina, Kateryna
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Vikström, Lotta
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    School-to-work Transitions for Students with Intellectual Disabilities: Teachers' Perceptions and Experiences of a Recent Workplace-Based Reform in Sweden2021In: Journal of International Special Needs Education, ISSN 2159-4341, E-ISSN 2331-4001, Vol. 24, no 2, p. 86-96Article in journal (Refereed)
    Abstract [en]

    Having a job, or being employed, is associated with a number of positive effects. Although policies in Sweden support the right of people with disabilities to work and highlight access to employment as a priority, this group of people continues to lose out in employment against other citizens. However, little is known about actions or initiatives implemented to enhance labor market participation among people with disabilities. This study contributes useful findings on a promising implementation of a school-to-work transition initiative, workplace based learning (WBL), in special needs upper-secondary schools in Sweden. The aim of the study was to identify how teachers, having a key role in the implementation process, view and experience WBL and its actual functioning to enhance school-to-work transitions for students with intellectual disabilities. Drawing on 13 interviews with teachers working as supervisors and coordinators in the WBL training, our findings lead to three main conclusions. First, the teachers had significant reliance on WBL and its potential to prepare students for the labor market. Second, the teachers hesitated with regard to whether and to what extent WBL actually enhances school-to-work transitions. Third, the WBL reform has had significant negative effects on the working conditions of the supervising teachers involved. Our study uncovers a number of barriers for WBL to function as an actual bridge to work for students with intellectual disabilities, which we argue have important messages to bring for both policy and practice. 

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  • 11.
    Junkka, Johan
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Sandström, Glenn
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    The emergence of social gaps in mental health: a longitudinal population study in Sweden, 1900-19592020In: PLOS ONE, E-ISSN 1932-6203, Vol. 15, no 4, article id e0232462Article in journal (Refereed)
    Abstract [en]

    During the recent decades, social inequalities in mental health have increased and are now one of the most persistent features of contemporary society. There is limited knowledge about when this pattern emerged or whether it has been a historically fixed feature. The objective of this study was to assess whether socioeconomic and gender gaps in mental health changed during the period 1900–1959 in Sweden. We used historical micro data which report all necessary information on individuals’ demographic characteristics, occupational attainment and mental disorders (N = 2,450) in a Swedish population of 193,893. Changes over time was tested using multilevel Cox proportional hazard models. We tested how gender-specific risks of mental disorder changed and how gender-specific socioeconomic status was related to risks of mental disorder later in life. We found a reversal in gender gaps in mental health during the study period. Women had a lower risk than men in 1900 and higher risks in 1959. For men, we found a negative gradient in SES risks in 1900 and a positive gradient in 1959. For women, we found no clear SES gradient in the risk of mental disorder. These findings suggest that the contemporary patterns in socioeconomic and gender gaps in mental disorder emerged during the 1940s and 1950s and have since then persisted.

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  • 12.
    Junkka, Johan
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Vikström, Lotta
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Healthy migrant perspectives on disability and mobility in a nineteenth-century population2021Report (Other academic)
    Abstract [en]

    The strong association between weak health and immobility suggests why there is insufficient knowledge on how disability affects human migration, historically and today. Swedish parish registers digitized by the Demographic Data Base (DDB), Umeå University, enable this study to investigate a 19th-century population of more than 35,000 including a group long hidden in research and society because of disability. First, rates and regressions demonstrate that disability impeded the migration of both men and women albeit with variations by disability type and over time. During industrialisation the overall migration risk was increasing, but not in case of disability. Second, spatial analysis shows that disability limited the distance migrants crossed, especially in the pre-industrial period and among women. During industrial time, migrants’ distance and destinations became less determined by disability. We address healthy migrant perspectives and lock-in mechanisms to discuss the disability differences in migration.

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  • 13.
    Karhina, Kateryna
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Ineland, Jens
    Umeå University, Faculty of Social Sciences, Department of Social Work.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Stakeholder views on young adults with intellectual disabilities as a workforce: a qualitative study on students' performance in upper secondary education and their employment potential2022In: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309, Vol. 26, no 4, p. 28p. 1057-1074Article in journal (Refereed)
    Abstract [en]

    People with intellectual disabilities are the most disadvantaged group among all disability types when it comes to employment. In Sweden, special needs upper secondary schools prepare students with intellectual disabilities for the labour market using practice periods at workplaces. This study targets stakeholder involved in their school-to-work transition (i.e. teachers, employers, employment agency officials). The aim is to identify how they view: (1) the working capabilities of students during practice periods and (2) their employment potential. We base the analysis on interview data with the stakeholders using Grounded Theory. Our results identify three student types whose preparedness for the labour market differs considerably. One student type performs well during the practice period and represents a high potential to enter the workforce. The other two student types have the lower working capability and employment potential. Our study highlights stakeholders as resources to improve the labour market preparations of students with intellectual disabilities.

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  • 14.
    Liselotte, Eriksson
    et al.
    Umeå University, Faculty of Social Sciences, Umeå Centre for Gender Studies (UCGS).
    Junkka, Johan
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Sandström, Glenn
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Supply or demand?: Institutionalization of the mentally ill in the emerging Swedish welfare state, 1900–19592021Report (Other academic)
    Abstract [en]

    Historical studies on the institutionalization of the mentally ill have primarily relied on data on institutionalized patients rather than the population at risk. Consequently, the underlying factors of institutionalization are unclear. Using Swedish longitudinal microdata from 1900–1959 reporting mental disorders, we examine whether supply-side factors such as distance to institutions and number of asylum beds influenced the risk of institutionalization, in addition to demand-side factors such as access to family. Institutionalization risks were associated with the supply of beds and proximity to an asylum, but also dependent on families’ unmet demand for care of relatives. As the supply of mental care met this family-driven demand in the 1930s, the relative risk of institutionalization increased among those lacking family networks.

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  • 15.
    Liselotte, Eriksson
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Social Sciences, Umeå Centre for Gender Studies (UCGS).
    Junkka, Johan
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Sandström, Glenn
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Vikström, Lotta
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Supply or demand? Institutionalization of the mentally ill in the emerging Swedish welfare state, 1900–592022In: History of Psychiatry, ISSN 0957-154X, E-ISSN 1740-2360, Vol. 33, no 2, p. 180-199Article in journal (Refereed)
    Abstract [en]

    Historical studies on the institutionalization of the mentally ill have primarily relied on data for institutionalized patients rather than the population at risk. Consequently, the underlying factors of institutionalization are unclear. Using Swedish longitudinal microdata from 1900–59 reporting mental disorders, we examine whether supply factors, such as distance to institutions and number of asylum beds, influenced the risk of institutionalization, in addition to demand factors such as access to family. Institutionalization risks were associated with the supply of beds and proximity to an asylum, but also dependent on families’ unmet demand for care of relatives. As the supply of mental care met this family-driven demand in the 1930s, the relative risk of institutionalization increased among those lacking family networks.

  • 16.
    Ljuslinder, Karin
    et al.
    Umeå University, Faculty of Arts, Department of culture and media studies.
    Ellis, Katie
    Curtin University, Australia.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Cripping Time: Understanding the Life Course through the Lens of Ableism2020In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 22, no 1, p. 35-38Article in journal (Refereed)
    Abstract [en]

    Normative time occupies a prominent place in life course theory. Time intersects with the life course to dictate discourses of appropriate life stage progression in a linear chain of events from birth to reproduction and finally death. Taking crip time and the life course as their focus, the papers in this special section recognize that cultural understandings of what constitutes disability are connected to understandings of time and the idea of a normative life course, which in turn builds on ableist norms. The idea of ability as the desirable normal state creates a realm of compulsory able-bodidness. Everybody that falls outside this hegemonic assumption is culturally deviant and wrong. Crip time creates an understanding of time that differs from ableist time and unravels the social construction of ability. Crip time is approached from multiple perspectives in this special section and traverse a number of disciplines and different methodologies.

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  • 17.
    Ljuslinder, Karin
    et al.
    Umeå University, Faculty of Arts, Department of culture and media studies.
    Vikström, LottaUmeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).Ellis, KatieCurtin University, Australia.
    Cripping Time: Understanding the Life Course through the Lens of Ableism2020Collection (editor) (Refereed)
    Abstract [en]

    The cultural understanding of what constitutes a disability is connected to understandings of time, aging and the idea of a normative life course. However, research with a life course perspective within disability studies has often focused on possibilities and obstacles to achieve the goals of the normative life such as work, marriage and children. Studies in ableism, on the other hand, has focused on the construction of the normative life course itself. According to Kafer (2012) able-bodiedness as the desirable normal permeates our understanding of time. But, rendering crip embodiments and their challenges to normative time creates an understanding of time that differs from the able-bodied one - as well as presenting a challenge to the construct of time and life courses in a normative ableist sense.

    This special section aims to advance knowledge and discussion of the ascribed disabled life course by employing perspectives on disability and time that draws from the understanding of ableist normalcy and crip time, thus contributing to field of ableism studies.

  • 18.
    Namatovu, Fredinah
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    The impact of disability on partnership formation in Sweden during 1990-20092020In: The History of the Family, ISSN 1081-602X, E-ISSN 1873-5398, Vol. 25, no 2, p. 230-245Article in journal (Refereed)
    Abstract [en]

    Evidence suggests that disability negatively affects people’s propensity to find a partner. Persons with disabilities that eventually find a partner do so later in life compared to the average population. There is a lack of studies on the differences in partnership opportunities for persons with disabilities compared to those without disabilities in Sweden. The aim of this study is to assess the impact of disability on partnership formation and to assess whether partnership formation varies as a function of individual demographic and socio-economic factors. We use nationwide data available in the Swedish Initiative for Research on Microdata in Social and Medical Sciences (Umeå SIMSAM Lab). We follow persons born from 1973 to 1977 when they were from 16 to 37 years of age and analyze their data using logistic regression. Our findings indicate that regardless of whether a person started to receive a disability pension at an early age or later, it was associated with lower odds for partnership formation. For persons who started receiving disability pension from 16 to 20 years of age, chances for partnership formation reduced with increase in age of partnership. Individuals that started to receive disability pension later were more likely to form partnership prior to receiving disability pension. Partnership formation was less likely among persons born outside Sweden, in persons with mothers born outside Sweden, in individuals born by unmarried mothers and in persons, whose mothers had a high level of education. Partnership was high among women and among persons who had many maternal siblings. In conclusion, receiving disability pension was associated with reduced chances for partnership formation. Receiving disability pension might imply financial constraints that negatively influence partnership formation supporting Oppenheimer’s theory on the economic cost of marriage and the uncertainty hypothesis.

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  • 19.
    Namatovu, Fredinah
    et al.
    Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics.
    Vikström, Lotta
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    The relationship between disability and parental status: a register study of the 1968 to 1970 birth cohorts2021In: BMC Public Health, E-ISSN 1471-2458, Vol. 21, no 1, article id 343Article in journal (Refereed)
    Abstract [en]

    Background: Having children is a major life course event yet some disabilities could make it biologically challenging and some others could limit access to necessary socioeconomic resources. To date, there is relatively little data on disability and parental status and our study aimed to investigate this relationship.

    Methods: This longitudinal cohort study was based on register data obtained from all people born in Sweden from 1968 to 1970 (n = 440220). We performed descriptive analyses, graphical plots, logistic regression, and Cox regression analyses.

    Results: Our findings from both logistic regression and Cox regression indicated that individuals that started to receive disability benefits at an early age had reduced chances of having children during the follow-up duration. Men with disabilities were less likely to have children when compared to women with disabilities and to men and women without disabilities.

    Conclusions: We found evidence that disability during early adulthood was associated with reduced chances of having children. Findings support policies and programmes aimed at promoting optimal health during early adulthood, as this would promote continued labour force participation, reduce early use of disability benefits, and possibly improve chances of becoming a parent.

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  • 20.
    Namatovu, Fredinah
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Ng, Nawi
    Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health. Global and Public Health, School of Public Health and Community.
    Adverse perinatal conditions and receiving a disability pension early in life2020In: PLOS ONE, E-ISSN 1932-6203, Vol. 15, no 2, article id e0229285Article in journal (Refereed)
    Abstract [en]

    Objective: The number of young adults on disability pension (DP) is increasing in European countries, creating a need to understand the related risk factors. This study aimed to determine whether adverse perinatal conditions are associated with receiving a DP early in life.

    Methods: This longitudinal cohort study consisted of all persons (N = 453,223) born in Sweden during 1973–1977, observed from 1991 through 2010 when they were aged between 16 and 37 years. Statistics Sweden provided linked national data on the children and their parents. We used logistic regression to assess the association between perinatal health conditions (birth defect, Apgar score, and small for gestational age) and receiving a DP, adjusting for maternal education and the sex of the child.

    Results: New recipients of DP were significantly more likely to have had a birth defect (adjusted odds ratio [AOR] 2.74, 95% CI: 2.49–3.00), to have had low Apgar score (AOR 2.12, 95% CI: 1.77–2.52), to have been small for gestational age (AOR 1.73, 95% CI: 1.54–1.94) and to be females (AOR 1.55, 95% CI: 1.46–1.64). Higher maternal education was associated with lower odds of receiving a DP (AOR 0.74, 95% CI: 0.69–0.79) for those with high school education and (AOR 0.67, 95% CI: 0.59–0.75) for those with university education. Age-stratified analysis confirmed increased odds of receiving a DP among those with birth defects and small for gestational age, but this effect reduced with increasing age. Apgar score was significantly associated with starting to receive a DP at ages 16–18 and 19–29, but not at ages 30–33. Women had lower odds of receiving a DP at ages 16–18 (AOR 0.73, 95% CI: 0.64–0.85); however, this reversed from age 19 and upwards (AOR 1.53, 95% CI: 1.41–1.67) and (AOR 2.16, 95% CI: 1.95–2.40) for the age groups of 19–29 and 30–33, respectively. Persons with high maternal education were less likely to receive a DP regardless of age at receiving a DP.

    Conclusion: Having a birth defect was the strongest indicator of receiving a DP during early adulthood, followed by small for gestational age and low Apgar score. Overall, the effects of the studied perinatal health conditions were pronounced in those who received a DP at 16–18 years, but this effect weakened with increasing age at receiving a DP. Our findings suggest that policies and programs geared at promoting optimal health at birth might contribute to a reduction in receiving a DP.

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  • 21.
    Nordlund, Madelene
    et al.
    Umeå University, Faculty of Social Sciences, Department of Sociology.
    Larsson, Daniel
    Umeå University, Faculty of Social Sciences, Department of Sociology.
    Stattin, Mikael
    Umeå University, Faculty of Social Sciences, Department of Sociology.
    Disability benefits and work reconsidered: is work really good for people with disabilities?2021Report (Other academic)
    Abstract [en]

    OBJECTIVES: In this study we ask if employment is beneficial for people with disabilities (psychiatric respectively musculoskeletal diagnoses). We set out two hypotheses: 1) Disabled people with an employment report better health than those without employment. 2) Work conditions affect the extent to whichwork benefits the health.

    METHODS: We used longitudinal data, the Swedish Survey of Living Conditions 2002/03 and 2010/11. The number of respondents were 1925 including both people with diagnoses and a control group without any diagnosis. Linear Probability Models were regressed to identify variations between disability groups, as regards the correlation between paid work and self-reported health.

    RESULTS: People with diagnoses seemed to benefit from employment, and this was particularly evident for people with psychiatric diagnoses. The effect was also stronger in subjects with severe symptoms from their diagnosis. This may be because people with severe symptoms are more affected by their illnesses, and therefore gain more from participation in everyday activities. Having a job can work as an important source to fulfill various psychosocial needs. Further, experiences of poorer work environments tended to be associated with lower levels of health. This result is important given the trend that policies might result in that disabled people are forced to engage in work activities in order to receive benefits, irrespective of their work preferences.

    CONCLUSIONS: We conclude that the policy aim to involve the disabled in paid work is appropriate for improving health but policies should be more flexible in relation to individual needs of the disabled.

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  • 22.
    Nordlund, Madelene
    et al.
    Umeå University, Faculty of Social Sciences, Department of Sociology.
    Wickman, Kim
    Umeå University, Faculty of Social Sciences, Department of Education.
    Karp, Staffan
    Umeå University, Faculty of Social Sciences, Department of Education.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Equal abilities – the Swedish parasport federation and the inclusion process2022In: Idrottsforum.org/Nordic sport science forum, ISSN 1652-7224, Vol. 13, p. 111-129Article in journal (Refereed)
    Abstract [en]

    A major organizational change is currently taking place in Swedish sports, with people labelled with disabilities leaving the Swedish Para-sport Federation (SPF) to participate in mainstream sports under the Swedish Sports Confederation. The aim of this study was to map the expectations of this ongoing process of the stakeholders of the SPF.  Based on a questionnaire with 130 respondents connected to the SPF we found that, overall, the respondents were optimistic about mixed training groups, something that could point towards the possibility of equality between PLwD (people labelled with disabilities) and mainstream athletes. However, a rather large number of respondents feared negative consequences in terms of the physical environment for PLwD. This means that inclusion may create a dilemma regarding the relationship between the individual and the environment. We conclude that inclusion works at different levels of organized sport and there is insufficient knowledge about the impact of inclusion.

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  • 23.
    Nordlund, Madelene
    et al.
    Umeå University, Faculty of Social Sciences, Department of Sociology.
    Wickman, Kim
    Umeå University, Faculty of Social Sciences, Department of Education.
    Vikström, Lotta
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Karp, Staffan
    Umeå University, Faculty of Social Sciences, Department of Education.
    Equal Abilities: The Swedish Parasport Federation and the Inclusion Process2021Report (Other academic)
    Abstract [en]

    At present, there is an ongoing organizational change in the Swedish Sport Confederation. Through a comprehensive inclusion process persons with disability (PWD) are leaving the Parasport Federation for mainstream sport within the Swedish Sports Confederation (SSC). The purpose of this study was to advance the knowledge about how inclusion, after the ongoing change, is received and perceived by Parasport stakeholders at different levels in a sport organization that aimed to assess the feasibility of an organizational change towards inclusive environments in the SSC. This has been done by reporting the results from a questionnaire that stakeholders within the SSC responded to. In total, the respondents amounted to 130 individuals. The results point to mainly positive expectations concerning the inclusion process, which is a part of strategy plan of the Swedish Parasport Federation. Both athletes and stakeholders seem to share a mainly optimistic view of what the change can lead to. The study is part of an extensive investigation of the organizational change of the Swedish Sports Confederation towards inclusion of PWD.

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  • 24.
    Sandström, Glenn
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Stockholm University Demography Unit (SUDA), Stockholm University, Stockholm, Sweden.
    Namatovu, Fredinah
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Ineland, Jens
    Umeå University, Faculty of Social Sciences, Department of Education.
    Larsson, Daniel
    Umeå University, Faculty of Social Sciences, Department of Sociology.
    Ng, Nawi
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health.
    Stattin, Mikael
    Umeå University, Faculty of Social Sciences, Department of Sociology.
    The Persistence of High Levels of Living Alone Among Adults with Disabilities in Sweden, 1993–20112021In: Population: Research and Policy Review, ISSN 0167-5923, E-ISSN 1573-7829, Vol. 40, no 2, p. 163-185Article in journal (Refereed)
    Abstract [en]

    This study investigates how the probability to live alone has developed among working age individuals with and without disabilities in Sweden during the period 1993–2011 when extensive political reforms to improve the integration of disabled individuals in society were implemented. The results show that individuals with disabilities are approximately twice as likely to be living alone when compared to individuals without disabilities. People with disabilities were also more likely to report low life satisfaction, and this was especially true among individuals with disabilities living alone. Men and women with disabilities also tend to experience longer periods of living as a one-person household than non-disabled people. Over time we find no indications of reduced differences in family outcomes between disabled and non-disabled individuals but rather evidence to the contrary. These differences are interpreted as being the result of the disadvantage disabled individual’s experience in the partner market and that people with disabilities are less successful in forming partnerships that can lead to cohabitation and family formation. The results thus show how disabled individuals still face societal barriers that limit their possibilities to find and sustain relationships that result in stable cohabitation despite increased efforts to improve their inclusion in Swedish society.

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  • 25.
    Söderlund, Hanna
    et al.
    Umeå University, Faculty of Arts, Department of language studies.
    Wälivaara, Josefine
    Umeå University, Faculty of Arts, Department of culture and media studies.
    Ljuslinder, Karin
    Umeå University, Faculty of Arts, Department of culture and media studies.
    ”Handikapptoaletten hade de som förråd”: Humors potential att synliggöra och utmana funktionsnormativitet2021Report (Other academic)
    Abstract [en]

    Humour has the potential to challenge or reproduce norms, established power relations, preconceived notions and oppressive structures, not least for marginalized groups. The purpose of this article is to explore humour as a potential tool to make visible and challenge normative notions about disability. The question posed to the material is: How is humour used to make visible and challenge ableism in interview conversations between people with experiences of disability? The material for this study consists of a Swedish podcast, where people with different disabilities are interviewed by podcasters who are also disabled. The podcast is a medium where the conditions for conversations differ from other traditional media because they are not governed by broadcasting rules as traditional media are. In the analysis it is examined how the participants use absurdity, exaggerations, and understatements as well as surprise effects which makes ableism visible. The three themes examined are the notions of (im)possible subject positions, the narrative of the tragic life and the able-bodied ideal. One of the conclusions discussed is that the humour used indicates that there is co-identification among the participants which both shows that the participants have common experiences that are joked about as absurd, and sometimes different experiences or attitudes, which are negotiated by using humour as a way of dealing with situations that could be socially difficult.

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  • 26.
    Söderlund, Hanna
    et al.
    Umeå University, Faculty of Arts, Department of language studies.
    Wälivaara, Josefine
    Umeå University, Faculty of Arts, Department of culture and media studies.
    Ljuslinder, Karin
    Umeå University, Faculty of Arts, Department of culture and media studies.
    ”Handikapptoaletten hade de som förråd”: humors potential att synliggöra och utmana funktionsnormativitet2021In: HumaNetten, E-ISSN 1403-2279, no 47, p. 143-168Article in journal (Refereed)
    Abstract [en]

    Humour has the potential to challenge or reproduce norms, established power relations, preconceived notions and oppressive structures, not least for marginalized groups. The purpose of this article is to explore humour as a potential tool to make visible and challenge normative notions about disability. The question posed to the material is: How is humour used to make visible and challenge ableism in interview conversations between people with experiences of disability? The material for this study consists of a Swedish podcast, where people with different disabilities are interviewed by podcasters who are also disabled. The podcast is a medium where the conditions for conversations differ from other traditional media because they are not governed by broadcasting rules as traditional media are. In the analysis it is examined how the participants use absurdity, exaggerations, and understatements as well as surprise effects which makes ableism visible. The three themes examined are the notions of (im)possible subject positions, the narrative of the tragic life and the able-bodied ideal. One of the conclusions discussed is that the humour used indicates that there is co-identification among the participants which both shows that the participants have common experiences that are joked about as absurd, and sometimes different experiences or attitudes, which are negotiated by using humour as a way of dealing with situations that could be socially difficult.

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  • 27.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Edvinsson, Sören
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics.
    Disability, mortality and causes of death in a 19th-century Swedish population2021In: Historical Life Course Studies, E-ISSN 2352-6343, Vol. 10, no S3, p. 151-155Article in journal (Refereed)
    Abstract [en]

    Our study aims to find how disability affected human health in historical time through an examination of individuals' mortality risks and death causes. Swedish parish registers digitized by the Demographic Data Base (DDB) enable us to account for a relatively high number of persons reported to have disabilities, and to compare them with a group of non-disabled cases. The findings concern a 19th-century population of 35,610 individuals in the Sundsvall region, Sweden, and show that disability increased the premature mortality risk substantially. Disability seems to have jeopardized men’s survival in particular, and perhaps due to gendered expectations concerning the type of work men and women became less able to perform when disabled. Our study of death causes indicates that their deaths were less characterized by infectious diseases than among the non-disabled group, as a possible consequence of lower exposure to infections due to the way in which disability could impede opportunities for interaction with peers in the community. In all, our mortality findings suggest that disability was associated with poor living conditions and limited possibilities to participate in work and social life, which further tend to have accumulated across life and resulted in ill health indicated by premature death.

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  • 28.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Haage, Helena
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Sequence analysis of how disability influenced life trajectories in a past population from the nineteenth-century Sundsvall region, Sweden2017In: Historical Life Course Studies, E-ISSN 2352-6343, Vol. 4, p. 97-119Article in journal (Refereed)
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  • 29.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Haage, Helena
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    First a job, and then a family?: Impacts of disabilities on young people's life courses in a nineteenth-century Swedish region2017In: Disability Studies Quarterly, ISSN 1041-5718, E-ISSN 2159-8371, Vol. 37, no 4Article in journal (Refereed)
    Abstract [en]

    This study considers the life courses of young men and women with and without disabilities in the Sundsvall region of Sweden during the nineteenth century. It aims to ascertain how disability and gender shaped their involvement in work and their experience of family in order to assess the extent of their social inclusion. Through the use of Swedish parish registers digitized by the Demographic Data Base, Umeå University, we examine 8,874 individuals observed from 15 to 33 years of age to investigate whether obtaining a job, getting married and having children were less frequent events for people with disabilities. Our results reveal that this was the case and particularly for those with mental disabilities, even if having an impairment did not wholly prevent people from finding a job. However, their work did not represent the key to family formation and for the women it implied a higher rate of illegitimacy. We argue that the lower level of inclusion in work and family was not solely the outcome of the impairment itself, but differed in relation to the particular attitudes towards men and women with disabilities within the labour market and society more generally in this particular context.

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  • 30.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Social Sciences, Umeå School of Business and Economics (USBE), Statistics.
    Junkka, Johan
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Haage, Helena
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Ett annorlunda liv?: Följder av funktionsnedsättningar i 1800-talets Sverige2019In: Funktionsnedsättning i arbetsliv och välfärd: rapport från forskarseminariet i Umeå 16–17 januari 2019, Försäkringskassan; Analys och prognos , 2019, p. 15-29Chapter in book (Other academic)
    Abstract [sv]

    Vad innebar funktionsnedsättningar för människors delaktighet i 1800-talets samhälle? Studien besvarar frågan genom att undersöka över 35,000 unga personers chanser att hitta ett första jobb där levnadsbanan för 15-åringar följs upp närmare. Funktionsnedsättningar medförde svårigheter på både arbets- och partnermarknaden även om det inte var omöjligt att skaffa jobb, gifta sig och bilda familj. Det vittnar om att nedsatt funktionsförmåga innebar ett annorlunda liv och möjligen socialt utanförskap, men inte alltid. Följderna varierade beroende på typ av nedsättning där omgivningens attityder till olika funktionsnedsättningar och könsbundna förväntningar tycks ha spelat roll. Fysiska nedsättningar hade inte lika negativa effekter för arbete, giftermål och överlevnad som psykiska nedsättningar. Resultaten bygger på kyrkböcker digitaliserade av Demografiska Databasens (DDB), Umeå Universitet, där prästerna noterade funktionsavvikelser och händelser i församlingsbornas liv (t.ex. yrke, giftermål, barnafödande). Studien belyser hur levnadsvillkor och möjligheter till delaktighet i samhället via arbete gestaltade sig för individer i historisk tid till följd av funktionsnedsättningar – förhållanden som dröjer sig kvar än idag.

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  • 31.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Junkka, Johan
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Karhina, Kateryna
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Two Centuries of Disability Disadvantages in Swedish Partnerships2021Report (Other academic)
    Abstract [en]

    Partnership signifies a key transition for social recognition in society. This study identifies long-term trends of disability and partnership in Sweden evidenced by the chances to marry or cohabit during two centuries(1800s–2010s). We compare results from studies within one comprehensive disability project, making use of quantitative life-course analysis and population records. Our findings uncover a remarkably persistent trendfrom the 1800s until the 2010s. Disability impeded both men and women’s partnership chances significantly (by about 60%), with some variations across disability types, genders, and periods. That disabled people did not enjoy greater access to a partner relative to others while Sweden moved from a poor country to a wealthy welfare state, suggests that disability persistently affords fewer possibilities to participate in social life and society. Our study is exceptional by combining disability with partnership and comparing recent results with the past.

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  • 32.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Junkka, Johan
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Namatovu, Fredinah
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Medicine, Department of Epidemiology and Global Health.
    Häggström Lundevaller, Erling
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Karhina, Kateryna
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    A longitudinal study of how disability affects mortality in Swedish Populations from the 1800s, 1900s and 2000s2021Report (Other academic)
    Abstract [en]

    BACKGROUND: Studies from across the world show that disability limits people’s health and social wellbeing in present-day populations. This disadvantage can lead to premature death, but there is dearth knowledge about the relationship between disability and mortality and changes over time.   

    OBJECTIVES: Unique access to longitudinal micro data on comprehensive Swedish populations enabled us to examine how disability affects premature death in men and women from the 1800s until 2010. 

    METHODS: Cox proportional regressions were used to estimate mortality hazards by disability status, gender and socio-economic indicators in three study populations from the 1800s, 1900s and 2000s. We followed all adults having disability from age 25 to compare their premature death risks (< age 43) relative to non-disabled groups.

    RESULTS: Irrespective of gender and century studied, the adjusted hazard ratios show that adults with disabilities had a significantly higher premature death risk relative to adults without disabilities, and it increased over time. In the 1800s, disability about doubled this risk (HR: 2.31, CI: 1.65–3.22) and it tripled from 1900–1959 (HR 3.01, CI 2.60– 3.48). At the turn of the 21th century, the mortality risk was almost ten-folded (HR 9.90, CI 8.03–10.5). 

    CONCLUSIONS: This study provides the first comprehensive estimates on how disability increased mortality in Swedish populations from the 1800s until the 2000s. Across three centuries, disability was associated with a profoundly higher relative death risk in adults aged 25–42. This risk grew when the general survival in Sweden improved and it was the highest in the 1990–2010 period. Fundamental societal changes and extensive welfare provisions promoting equality in gender, health and social wellbeing of all citizens have not come to include younger generations with disabilities. 

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  • 33.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Karhina, Kateryna
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR). Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies.
    Junkka, Johan
    Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Two Centuries of Inequalities: Disability and Partnership in Sweden2021Report (Other academic)
    Abstract [en]

    This study brings together a unique selection of results that reveal how disabilities shaped the marriage/cohabitation chances in Swedish populations from the 1800s until recent decades. Using longitudinal population registers and a life-course approach, multivariate statistical analysis helps to estimate the impact of disability on partnership relative to other individual-level attributes in different temporal contexts of Swedish society. While there were some differences by type of disability and gender, the overall finding is that disabilities kept weakening people’s partnership chances to a similarly high extent (with about 60% or even more), as Sweden moved from being a poor country in the 1800s to a modern welfare state. We discuss the findings from social inequalities perspectives arguing that disabled people’s partnership chances not only represent how potential partners perceive disability; these chances also reflect general attitudes in society towards disability that work to compromise disabled people’s participation in social life and society. Our long-term results uncover a remarkable persistence in the relationship between disability and partnership in turn suggesting that social inequalities persist being associated with disability in spite of profound structural changes and extensive welfare measures in Sweden to create a more equal society for all.

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  • 34.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Shah, SonaliJanssens, Angelique
    Disability, partnership, and family across time and space2020Collection (editor) (Refereed)
    Abstract [en]

    Notions of family life and romantic partnership, like notions ofdisability, have been culturally constructed and socially produced over historical time, and our understandings of these notions are being continually challenged and re-negotiated across time and space. Policies, institutions, and cultural practices across the globe have brought about changes to the construction of the family and to the rights and inclusion of disabled people in private and public life. This special issue brings together a collection of studies from different countries and time periods to explore the interplay between disability, romantic partnerships, and family life across the individual lifetime and between generations. With this interdisciplinary collection, we seek to merge disability research and research on family and partnerships through a life course lens. This offers unique insights and opportunities to interconnect historical and cultural location and changing social institutions with individual and family experiences. This introduction presents the eight studies in the collection and discusses them within a life course frame that views disabled people’s roles as partners, spouses, and members of a family. In so doing, it engages in ananalysis of (dis)similarities concerning how family dynamics, romantic relationships, and disability have developed over time and in different spaces.

  • 35.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Shah, Sonali
    Janssens, Angelique
    Introduction: disability, partnership, and family across time and space2020In: The History of the Family, ISSN 1081-602X, E-ISSN 1873-5398, Vol. 25, no 2, p. 177-201Article in journal (Other academic)
    Abstract [en]

    Notions of family life and romantic partnership, like notions of disability, have been culturally constructed and socially produced over historical time, and our understandings of these notions are being continually challenged and re-negotiated across time and space. Policies, institutions, and cultural practices across the globe have brought about changes to the construction of the family and to the rights and inclusion of disabled people in private and public life. This special issue brings together a collection of studies from different countries and time periods to explore the interplay between disability, romantic partnerships, and family life across the individual lifetime and between generations. With this interdisciplinary collection, we seek to merge disability research and research on family and partnerships through a life course lens. This offers unique insights and opportunities to interconnect historical and cultural location and changing social institutions with individual and family experiences. This introduction presents the eight studies in the collection and discusses them within a life course frame that views disabled people's roles as partners, spouses, and members of a family. In so doing, it engages in an analysis of (dis)similarities concerning how family dynamics, romantic relationships, and disability have developed over time and in different spaces.

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  • 36.
    Vikström, Lotta
    et al.
    Umeå University, Faculty of Arts, Department of historical, philosophical and religious studies. Umeå University, Faculty of Social Sciences, Centre for Demographic and Ageing Research (CEDAR).
    Wälivaara, Josefine
    Umeå University, Faculty of Arts, Department of culture and media studies.
    Ljuslinder, Karin
    Umeå University, Faculty of Arts, Department of culture and media studies.
    Liveable Disabilities: Life Courses and Opportunity Structures across Time in Sweden (Project Overview and Critical Reflections)2021Report (Other academic)
    Abstract [en]

    People with disabilities make up the largest minority group in the world (15% or 1 billion). Despite advocacy work and political advances in disability rights such as the UN Convention on the Rights of Persons with Disabilities, they are still marginalized in society and disability is often considered solely a medical condition associated with personal tragedy and exclusion. Since 2016, the European Research Council has funded the DISLIFE project’s proposal to research ‘liveable disabilities’ in Sweden from the 1800s until today. In this chapter, we present the project and its results on how societal circumstances have shaped the opportunities and lives of people with disabilities across time. We discuss the project’s use of the life course concept and from ableist perspectives and propose avenues for future research. Since the project results indicate that there have been little progress over time concerning the life opportunities of people with disabilities, a paramount work is ahead to which research aware of ableism can contribute.

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  • 37.
    Wickman, Kim
    et al.
    Umeå University, Faculty of Social Sciences, Department of Education.
    Berggren, Sandra
    Delaktighet, kreativitet och förundran: hälsofrämjande skolutveckling i praktiken2021In: Elevhälsa och en hälsofrämjande skolutveckling: i teori och praktik / [ed] Eva Hjörne och Roger Säljö, Malmö: Gleerups Utbildning AB, 2021, 1, p. 165-178Chapter in book (Other academic)
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  • 38.